Efficiency of Operations
1 Votes
1 Votes
Review Myositis Support And Understanding - Organisation in Sussex
Why Choose Myositis Support And Understanding In Sussex In Delaware
75% People Answered Yes For the Poll
3 Votes
1 Votes
Rate This location on below categories
Myositis Support And Understanding - Organisation in Sussex
9125 N Old State Rd
Sussex, Others
Delaware, United-states - 19960
Keywords List : Community organization in united states , Community organization in delaware , Community organization in sussex , Community organization in 19960 , Charity organization in united states , Charity organization in delaware , Charity organization in sussex , Nonprofit organization in united states , Nonprofit organization in delaware , Nonprofit organization in sussex , Nonprofit organization in 19960 , And support , And understanding , Myositis support , Support and understanding , Myositis support and understanding , Support and ,
Detailed description is MSU uses this page to promote information from our website, to help spread awareness of Myositis, along with providing the latest news and updates. Myositis Support and Understanding is a 501(c)3 nonprofit organization founded by Myositis patients, for Myositis patients, and care partners. We began in 2010 as 1 FB support group and a goal of one day being able to help patients under a nonprofit. That goal came true in 2015, with much work and the support of many. We now have 3 FB support groups that offer education, emotional and spiritual support, and even laughter. . . Our current programs and services include financial assistance, education, support, advocacy, and video chat support and educational sessions. We try to provide each member with a personal experience while building lasting relationships, as it can be lonely living with a rare disease.. . Our Financial Assistance program covers household expenses, medical bills, and travel expenses for myositis patients to see a specialist who may provide them with more information and treatment options that others are not aware of. . . Also, we will advocate for our members and Myositis patients with all levels of policy-makers, insurance companies, and other medical service decision-makers. Our vision also includes contributing any excess funds, if any, to Myositis cure- and treatment-centered research organizations to help further our shared goals.. . We believe in a “Knowledge in Action” approach. MSU’s board consists of real patients with Myositis, so we are able to fully understand what other patients go through. Our knowledge of Myositis, among its various treatments, complications, hardships and struggles give us a powerful base from which to formulate action plans. We are a tight-knit group that supports each other and others in our community.. Our drive to support and help one another motivates us to help other patients in any way we can. Through education, online support groups, video chats, and our financial assistance program, we are able to put our knowledge into action and truly do all that we can to assist and encourage those with Myositis.. . We provide wonderful opportunities for members, patients, and the general public to get involved through volunteering. If you are looking to get involved, please contact us today! To volunteer or join our board, you do not have to have myositis. We just ask that you are willing to learn about it. . . Why should you care about Myositis?. . Myositis is one of over 80 autoimmune conditions of which there is no cure. Myositis is known to hit at any time of life. Polymyositis and Dermatomyositis can both manifest during childhood and adulthood. Inclusion Body Myositis most commonly occurs in later adulthood. While there are presently only an estimated 50,000-75,000 myositis patients in the United States, as diagnostic criteria and tests get more sophisticated more people with undifferentiated autoimmune symptoms will likely be identified as having myositis. As this happens it is more and more possible that you will know someone affected by myositis..
Established in the recent years Myositis Support and Understanding in sussex, delaware in united-states.
This well-known establishment acts as a one-stop destination servicing customers both local and from other parts of the city...
Frequently Asked Questions About This Location