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When Alex Johnston and Ryan Fengstad heard the government of Alberta would be funding the gene therapy drug Zolgensma, they felt a weight lift off their shoulders.
“We’ve gotten a lot of tough news and this past year, with Zolgensma specifically, it just felt like there have been a lot of closed doors in our faces, and it really felt like Reign was getting left behind. With this new announcement we were so excited, we were overjoyed, we were crying watching the announcement with [Alberta Health Minister] Tyler Shandro,” Johnston said.
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