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ClinOne Hosts Expert Xtalks Webinar on Rare Disease Clinical Trials to Discuss the Caregiver Experience, Diversity Recruitment, and the Impact of Technology

September 19, 2022

Boston MA (PRWEB) September 19, 2022 -- ClinOne, the leading provider of Adaptive Experiences for clinical trial participants, continues its drive to make

Fabian Sandoval Daniel Defabio Daniel Defabio Linkedin Andrea Valente Linkedin Andrea Valente Community Engagement For Global Genes

Source: prweb.com

Rare Disease Clinical Trials: Site, Advocate and Technology Insights, Upcoming Webinar Hosted by Xtalks

August 31, 2022

Toronto, ON (PRWEB) August 31, 2022 -- Rare disease clinical trials are challenging on many levels, from identifying eligible patients, to making it

United Kingdom Fabian Sandoval Daniel Defabio Andrea Valente Emerson Clinical Research Institute Community Engagement

Source: prweb.com

Tell Your Story: Effie ParksRare Mom, Podcaster for Once Upon a Gene

April 23, 2022

Global Genes staff member Effie Parks shares her why - why she became involved in the rare community after her son was diagnosed with CTNNB1 syndrome.

Daniel Defabio Community Engagement For Global Genes Community Engagement Coordinator Once Upon Global Genes Community Engagement

Source: globalgenes.org

Tell Your Story: Daniel DeFabioRare Dad, Filmmaker, Advocate

April 22, 2022

Global Genes staff member Daniel DeFabio shares his why - why he became involved in the rare community after his son was diagnosed with Menkes disease.

New York United States Daniel Lucas Defabio Daniel Defabio Community Engagement For Global Genes Menkes Foundation