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Transcripts for BBCNEWS A Life of Pain 20240604 01:46:00

of an average day to see the impact her condition has on her everyday life. i impact her condition has on her everyday life- everyday life. i have ust woken from i everyday life. i have ust woken from a i everyday life. i have ust woken from a really i everyday life. i havejust woken from a really bad | everyday life. i have just i woken from a really bad night of pain. it was like a combined nerve pain and muscle contractions. i m used to it so i go about my day. looking from place to place is taking a lot of pain especially in myjoints but it s kind of flaring up the nerve pain from last night. i got 30 because i m a child. i am still in a lot of pain but at least i habitat in our. really good day but unfortunately my good days come with quite a lot of bad days afterwards. it is like i am being pulled so tight it is like i am being pulled so tight that it is burning. trying tight that it is burning. trying to get to sleep for hours. trying to get to sleep for hours. i tryin

Transcripts for BBCNEWS A Life of Pain 20240604 01:35:00

sense of danger and there isn t, so, therefore, that pain signal continues. for isn t, so, therefore, that pain signal continues. signal continues. forjan, the -rocess signal continues. forjan, the process has signal continues. forjan, the process has transformed - signal continues. forjan, the process has transformed her| process has transformed her life. i process has transformed her life. . , . process has transformed her life. ., , , process has transformed her life. ., , i, life. i was and properly still am, to some life. i was and properly still am, to some degree, - life. i was and properly still. am, to some degree, grieving the person that i was. because i am a shell of the person that i am a shell of the person that i used to be. my life revolves around the pain and the medical appointments and ordering prescriptions and it doesn t matter how hard i try. or how much i wish sure pray, it isn t all most likely isn t going to change. i wish i could turn the clock back. but

Transcripts for BBCNEWS A Life of Pain 20240604 01:57:00

now to be able to put the things together to help them manage it as effectively as i can manage it as effectively as i can i manage it as effectively as i can. ~ . , , manage it as effectively as i can. ~ , , can. i think i may be ust hope that the phone can. i think i may be ust hope that the phone will can. i think i may bejust hope that the phone will ring - can. i think i may bejust hope that the phone will ring and i that the phone will ring and there that the phone will ring and there will that the phone will ring and there will be that the phone will ring and there will be something i that the phone will ring and i there will be something new, that the phone will ring and - there will be something new, or i there will be something new, or i don t there will be something new, or idon t know. there will be something new, or i don t know, maybe there will be something new, or i don t know, maybe that- there will be something new, or idon t know, maybe that is-

Transcripts for BBCNEWS A Life of Pain 20240604 01:45:00

has lived almost half her life with pain. a serious problem with pain. a serious problem with her thyroid developed when she was aged just 11, leading to chronic pain that profoundly affected every aspect of her childhood and her teenage years. now she is studying at university but that s only possible because of a combination of medication and other therapies. you combination of medication and other therapies. other therapies. you have to find a way other therapies. you have to find a way of other therapies. you have to find a way of balancing i other therapies. you have to find a way of balancing the i find a way of balancing the benefits of the medication other side effects it creates, the risks that it creates and also quality of life. so at the minute, with the medication i m on, the side effects are minimal to on, the side effects are minimalto nine or on, the side effects are minimal to nine or if i do have them, they kind of blended with them, they kind of blended with the

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