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'They told me he was fine but I knew something was wrong as soon as Sam was born – if you are a parent you never stop looking for answers'

Every parent knows the worry caused by having a sick child. But having a child with a rare or undiagnosed condition must be incredibly stressful. This Sunday February 28 is Rare Disease Day and aims to raise awareness for the 400 million people around the world who live with an extremely uncommon condition. Ten-year-old Sam Grant is one of those children. When he was born, his mother thought he looked a little strange and was worried that there was something wrong, but everyone told her that sh...
Kaye Walker Jill Foundation Sunday February Rare Disease Day Sam Grant First Steps Therapy

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