Palm Coast girl has rare fatal disease, family raising money for therapy
You may have never heard of Sanfilippo Syndrome, but it's a devastating diagnosis.
Source: wogx.com
📰 Glenn Oneill News
Glenn Oneill News Today
Fast, Ad-Free News Updates
Stay updated with breaking news from Glenn Oneill. Real-time updates on events, politics, business and more.
Palm Coast girl has rare fatal disease, family raising money for therapy
You may have never heard of Sanfilippo Syndrome, but it's a devastating diagnosis.
Source: fox35orlando.com
Parents dream of a cure for Sanfilippo syndrome, a childhood dementia that comes with a 'death sentence'
Like Alzheimer's disease in older adults, the rare degenerative disease Sanfilippo syndrome impacts cognitive ability -- in children. Parents are hopeful for treatment, but there is no cure.
South Carolina United States Eliza Sanfilippo Dania Maxwell Los Angeles Muna Hattar Mendoza Cara Oneill
Source: sandiegouniontribune.com
Muskego family raising $1 million for research for Sanfilippo Syndrome
In the 24 hours after Livs third birthday, the GoFundMe page raised more than $100,000. As of Dec. 9, $167,520 has been raised.
Source: jsonline.com
'It's like Alzheimer's for children': 5-year-old in Austin has Sanfilippo Syndrome
It is a rare and fatal disease that is the result of a missing enzyme deficiency that causes toxic storage to build up in the brain. It is like Alzheimer and Dementia, but in children.
Source: fox7austin.com