Rare Aware News Today

A Clare mother and daughter are calling for increased resources for genetic services in treating rare diseases. A new campaign called Get Rare Aware is aimed at raising awareness of rare diseases and improving the quality of genetic services. Ciara Micks, aged 21, was diagnosed with Ehlers Danlos Syndrome in 2015.   The rare condition, […]

On Monday’s Morning Focus Pat Flynn was joined by Anne Micks who is part of a new national campaign ‘Get Rare Aware’ which has been launched by Rare Diseases Ireland. The campaign will see RDI hosting information events in each of the country’s new Regional Health Areas (RHAs) over the next two months to highlight […]

From shoe hole clips to trouser holders, Sonam Sakhuja’s idiosyncratic, unconventional jewellery can have a practical function and a story to teach. The designer talks us through her personal creative process… and how  it all fuses together. Rome-based Indian jewellery designer Sonam Sakhuja’s work is informed by deep memories from the past; by the craft cultures she was born into…  On the other hand, “my current contemporary self tries to bring out the surprise factor in my pieces,...