Ryan Anstaett News Today

In January, the Anstaett family learned their eight-year-old daughter had Batten disease, a rare condition with a difficult — and eventually terminal — prognosis. The drug showing promise in slowing the disease isn't covered by their insurance because it's still in clinical trials.

A family hopes to raise tens of thousands of dollars in the next few months to start a potentially lifesaving treatment for their 8-year-old.