Sickle Cell Data Collection Program News Today

Despite the fact that people with sickle cell disease have a much higher risk of serious illness or death if they develop COVID-19, a new study shows they're also much less likely than those without sickle cell disease to have gotten vaccinated against coronavirus.

<p>By combining data from a sickle cell disease registry and an immunization registry, researchers show gaps between people with sickle cell disease and those without, in rates of COVID-19 vaccination.</p>

Despite the fact that people with sickle cell disease have a much higher risk of serious illness or death if they develop COVID-19, a new study shows they’re

As if starting life with a potentially disabling genetic blood disease wasn't enough, a study shows that almost two-thirds of babies born with sickle cell disease are born to mothers who live in disadvantaged areas.

When Keoni Seals was about 11 months old, he would spend an entire day screaming in pain. It was unsettling, so his mother, Shyra, took him to the emergency room.

The infrastructure also provides a blueprint for similar initiatives in other rare diseases.

Many children with sickle cell anemia are not being screened for stroke or receiving proper medication.

A lack of data regarding sickle cell disease in the U.S. stunts efforts to improve outcomes for patients. The federally funded Sickle Cell Data Collection Program aims to chip away at these data gaps.

A lack of data regarding sickle cell disease in the U.S. stunts efforts to improve outcomes for patients. The federally funded Sickle Cell Data Collection Program aims to chip away at these data gaps.

A lack of data regarding sickle cell disease in the U.S. stunts efforts to improve outcomes for patients. The federally funded Sickle Cell Data Collection Program aims to chip away at these data gaps.