through that over an hour. injune, five month old arthur became the first baby to receive this revolutionary treatment on the nhs. now edward is one of a handful of babies being treated for the first time at the children s hospital in sheffield. sma itself is actually the most common genetic condition that causes infant deaths and severe disability worldwide. about 90% of children with sma type one would die by age two. so, this treatment would drastically change the disease progression and outcome of each patient. you don t know what s around the corner. there s only five years worth of data. so, from what i ve seen from other children, theyjust get stronger. so, the world really is his oyster. thank you, guys. edward has no idea he has just received the most expensive drug in the world, or how his life will now be transformed. but his parents feel
hospital in sheffield. sma itself is actually the most common genetic condition that causes infant deaths and severe disability worldwide. about 90% of children with sma type one would die by age two. so this treatment would drastically change the disease progression and outcome of each patient. you don t know what s around the corner. there s only five years worth of data. so, from what i ve seen from other children, theyjust get stronger. so the world really is his oyster. thank you, guys. edward has no idea he has just received the most expensive drug in the world, or how his life will now be transformed. but his parents feel he finally has a future. debbie tubby, bbc look east. sailing was one of the sports that team gb excelled at in this month s olympics, and today children from deprived communities in birmingham have been given the chance to have a go themselves.
got a cannula in which is a bit of plastic into his vein. got a cannula in which is a bit of plastic into his vein. and - got a cannula in which is a bit of plastic into his vein. and the i got a cannula in which is a bit of. plastic into his vein. and the drug goes plastic into his vein. and the drug goes through plastic into his vein. and the drug goes through that plastic into his vein. and the drug goes through that over plastic into his vein. and the drug goes through that over an - plastic into his vein. and the drug goes through that over an hour. l plastic into his vein. and the drugl goes through that over an hour. in june, goes through that over an hour. june, five months aso became goes through that over an hounm june, five months aso became the first baby to receive the revolutionary treatment on the nhs. now edward is one of a handful of babies being treated for the first time at the children s hospital in sheffield. . ~ time at the children s hospital in sheffi