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BBCNEWS The Travel Show January 7, 2022 11:48:00

Muscle weakness. as a baby, edward became floppy, he couldnt move his legs. doctors feared that one day he might lose the ability to breathe. and then along came the most expensive drug in the world — zolgensma. it costs £1.8 million, although the nhs got a discount and approved it for use last may. this is edward being given zolgensma via a drip last august. the one—off treatment lasted an hour. in that time, his life was transformed. his muscle tone is a lot stronger. hes almost feeling l...
Old Edward She Couldnt Move Muscle Weakness World Zolgensma Headlines Nhs Given Zolgensma

BBCNEWS BBC News at One January 7, 2022 13:18:00

Edward has been transformed. zoe conway has been to meet him and his mum, megan. hes just my little boy, just completely in awe of him, hes like the strongest little baby i know. im just so proud of him. hes just doing so well. edward was born with the genetic condition spinal muscular atrophy. it causes progressive muscle weakness. as a baby, edward became floppy, he couldnt move his legs. doctors feared that one day he might lose the ability to breathe. and then along came the most expensive d...
Little Boy Zoe Conway Old Edward Muscle Weakness She Couldnt Move Genetic Condition Spinal Muscular Atrophy

BBCNEWS BBC News January 7, 2022 10:43:00

But it rings hollow in a country that disagrees on how to define an attack that almost broke its democracy. nomia iqbal, bbc news, washington. last year the worlds most expensive drug was approved for use in the uk for the treatment of the rare genetic disorder, spinal muscular atrophy. one—year—old edward was given zolgensma in august, and its changed his life. zoe conway reports. hes just my little boy, just completely in awe of him, hes like the strongest little baby i know. im just so pr...
Secific Domain Bbc News Nomia Iqbal Old Edward Genetic Disorder Spinal Muscular Atrophy

BBCNEWS BBC News at One January 7, 2022 13:17:00

Grammaticas, thank you. the time is 16 minutes past one. our top story this lunchtime... staff absences in the nhs in england rise 40% in a week because of covid — nursing leaders warn of pressure on hospital care. coming up, the duchess of cambridge turns 40 this weekend — we look at how her public role has changed. and also in the sport, philippe coutinho is back in the premier league. the brazilian midfielder is heading to aston villa on loan from barcelona, where he willjoin up with his ...
Coming Up Staff Absences Hospital Care Unsafe Philippe Coutinho Premier League Aston Villa

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BBCNEWS Breakfast January 7, 2022 06:13:00

As the _ quick sharp frost but that will lift as the cloud and rain spread in. a wet start— as the cloud and rain spread in. a wet start for— as the cloud and rain spread in. a wet start for many, snow in the scottish— wet start for many, snow in the scottish hills, heavy rain at times, sunshine _ scottish hills, heavy rain at times, sunshine and showers in the north and west— sunshine and showers in the north and west later but after a brief lift in — and west later but after a brief ...
Quick Sharp Frost Scottish Hills Heavy Rain The Cloud Train Spread Wasnt It

BBCNEWS The Travel Show January 7, 2022 11:47:00

To the latest figures. meanwhile the armed forces have sent 200 personnel into hospitals across london to help with staff shortages. dementia cases are expected to almost triple across the world by 2050. experts say its down to ageing and growing populations. injune, zolgensma, a highly effective treatment for the rare genetic disorder spinal muscular atrophy, was approved for use on the nhs. its the worlds most expensive drug and has the potential to save the lives of babies with the condition....
Dementia Cases Staff Shortages Armed Forces World Zolgensma Headlines Nhs Old Edward

BBCNEWS Desmond Tutu Remembered January 7, 2022 14:49:00

Atmosphere. kids are pleased to be here. it is going to be a tough time. ,., ., .~ here. it is going to be a tough time. a ., here. it is going to be a tough time. ., i. here. it is going to be a tough time. ., ., time. good luck to you for the term ahead. time. good luck to you for the term ahead- head _ time. good luck to you for the term ahead. head teacher— time. good luck to you for the term ahead. head teacher of _ time. good luck to you for the term ahead. head teacher of high - time. g...
Head Teacher High Tunstall School Coronavirus At Nhs Won T Spinal Muscular Atrophy Muscle Weakness

BBCNEWS Breakfast January 7, 2022 06:18:00

Will have over the longer term, but the hope is that children like lena will forever be free of this disease. zoe conway, bbc news. it is amazing how it is changing lives it brings so much hope. meghan, the with edward, they will join us live just after 8am to talk about the drug and how it is continuing to change his life. bless you! i continuing to change his life. bless ou! . , continuing to change his life. bless ou! ., , , ., ., you! i have been tested! i had a lateral flow _ you! i have be...
Bbc News Zoe Conway Old Edward Lateral Flow Bi You Aj Lateral

BBCNEWS HARDtalk January 7, 2022 09:44:00

Last year, zolgensma, a highly effective treatment for the rare genetic disorder spinal muscular atrophy was approved for use on the nhs. its the worlds most expensive drug and has the potential to save the lives of babies with the condition. one—year—old edward was given the drug in august and its changed his life. zoe conway has been to meet him and his mum megan. hes just my little boy, just completely in awe of him, hes like the strongest little baby i know. im just so proud of him. hes ...
Spinal Muscular Atrophy World Zolgensma Genetic Disorder Old Edward Zoe Conway Mum Megan

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