muscle weakness. as a baby, edward became floppy, he couldn't move his legs. doctors feared that one day he might lose the ability to breathe. and then along came the most expensive drug in the world — zolgensma. it costs £1.8 million, although the nhs got a discount and approved it for use last may. this is edward being given zolgensma via a drip last august. the one—off treatment lasted an hour. in that time, his life was transformed. his muscle tone is a lot stronger. he's almost feeling like a child that doesn't have sma. he can roll, he can hold his head. i mean, honestly, it's endless, what he can do, compared to what he was doing before treatment. it's incredible. # if you see a crocodile...# the earlier a baby is given the drug, the better — ideally before the symptoms start. it wasn't clear whether edward