Gene therapy fails for Danish child treated for Sandhoff disease
Alissa Feldborg, a 3-year-old with an ultra rare genetic disease called Sandhoff, died this month after participating in a gene therapy trial.
Source: usatoday.com
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An experimental gene therapy was little Alissa's only hope. Now, instead of certain death, she faces an uncertain future.
An experimental gene therapy was little Alissas only hope. Now, instead of certain death, she faces an uncertain future. Karen Weintraub, USA TODAY Ā© Feldborg family photo Alissa Feldborg BOSTON ā Thomas Feldborg and Daria Rokina set off nearly every afternoon to explore this city. They leave from theirĀ hotel in theĀ Charlestown neighborhood, pushing theirĀ baby carriage, some days heading deep into downtown, others choosing a path along the Charles River.Ā Every few minu...
United States University Of Massachusetts Auburn University Cummings School Charles River Thomas Feldborg
Source: msn.com
Gene therapy offers hope for Danish girl, but uncertainty lies ahead
12:12 pm UTC Apr. 25, 2021 BOSTON ā Thomas Feldborg and Daria Rokina set off nearly every afternoon to explore this city. They leave from theirĀ hotel in theĀ Charlestown neighborhood, pushing theirĀ baby carriage, some days heading deep into downtown, others choosing a path along the Charles River.Ā Every few minutes, Rokina stopsĀ to peek inside and check on 16-month-old Alissa. SheĀ gently rubs AlissasĀ cheek and coos a few soothing words, makingĀ sure the little girl is warm enough in he...
Source: azcentral.com