Todd Feltner News Today

Going on with my kid . Its so isolating. Imagine if you have a child and they cant ever go outside. Can you see that . Not to get morbid, but i could potentially die. Tonight an extraordinary look inside their world. Shes more adventurous at night. It was like, oh, i have two bodies. We do a lot together. Shielded from the sun. He jumps from shadow to shadow. Hes always on lookout for the next safe place. Now in the spotlight. Out of the shadows. Welcome to dateline. Im lester holt. They live by...

Going on with my kid . Its so isolating. Imagine if you have a child and they cant ever go outside. Can you see that . Not to get morbid, but i could potentially die. Tonight an extraordinary look inside their world. Shes more adventurous at night. It was like, oh, i have two bodies. We do a lot together. Shielded from the sun. He jumps from shadow to shadow. Hes always on lookout for the next safe place. Now in the spotlight. Out of the shadows. Welcome to dateline. Im lester holt. They live by...

>> while children with epp do struggle, theres another disease out there thats more serious, more deadly. for this young girl named paris, every drop of sunlight that touches her skin is a matter of life and death. >>y think people understand the severity of it. not to get morbid, but i could potentially die. >> going out at night is the easiest way for paris to avoid the hot desert sun of st. george, utah. thats where her familys remarkable story begins, a journey with twists and turns that no ...

After three of their four children were diagnosed with xp, a deadly genetic disease that forces their children to avoid sunlight, jennifer and todd feltner said they were done taking risks. >> we should not go to vegas. we dont roll the dice well. >> but despite taking measures to avoid a pregnancy, jennifer discovered she was carrying a baby yet again. though there was a 75% chance that her child would not have the disease, jennifer was almost resigned to her familys extraordinary bad luck. >> ...

After three of their four children were diagnosed with xp, a deadly genetic disease that forces their children to avoid sunlight, jennifer and todd feltner said they were done taking risks. >> we should not go to vegas. our odds -- we dont roll the dice well. >> but despite taking measures to avoid a pregnancy, jennifer discovered she was carrying a baby yet again. though there was a 75% chance that her child would not have the disease, jennifer was almost resigned to her familys extraordinary b...

Reality. >> its his hope. i let him have that hope that some day he will get to lead a normal life without this struggle. >> while children with epp do struggle, theres another disease out there thats more serious, more deadly. for this young girl named paris, every drop of sunlight that touches her skin is a matter of life and death. >> i dont think people understand the severity of it. not to get morbid, but i could potentially die. >> going out at night is the easiest way for paris to avoid t...

After three of their four children were diagnosed with xp, a deadly genetic disease that forces their children to avoid sunlight, jennifer and todd feltner said they were done taking risks. >> we should not go to vegas. we dont roll the dice well. >> but despite taking measures to avoid a pregnancy, jennifer discovered she was carrying a baby yet again. though there was a 75% chance that her child would not have the disease, jennifer was almost resigned to her familys extraordinary bad luck. >> ...

>> its his hope. i let him have that hope that some day he will get to lead a normal life without this struggle. >> while children with epp do struggle, theres another disease out there thats more serious, more deadly. for this young girl named paris, every drop of sunlight that touches her skin is a matter of life and death. >>y think people understand the severity of it. not to get morbid, but i could potentially die. >> going out at night is the easiest way for paris to avoid the hot desert s...

A deadly genetic disease that forces their children to avoid sunlight, jennifer and todd feltner said they were done taking risks. >> we should not go to vegas. our odds -- we dont roll the dice well. >> but despite taking measures to avoid a pregnancy, jennifer discovered she was carrying a baby yet again. though there was a 75% chance that her child would not have the disease, jennifer was almost resigned to her familys extraordinary bad luck. >> just have him tested at birth, and this time we...

Struggle. >> while children with epp do struggle, theres another disease out there thats more serious, more deadly. for this young girl named paris, every drop of sunlight that touches her skin is a matter of life and death. >> i dont think people understand the severity of it. not to get morbid, but i could potentially die. >> going out at night is the easiest way for paris to avoid the hot desert sun of st. george, utah. thats where her familys remarkable story begins, a journey with twists an...