Understanding Patient Data News Today

In her latest blog, Dr Nicola Byrne discusses the new National Data Guardian guidance, and how enabling better public benefits evaluations will lead to increased public trust.

Pharmaceutical companies, NHS commissioners and universities have repeatedly breached agreements around sharing patient data, an investigation by The British Medical Journal (BMJ) has revealed.

Drug firms, private healthcare providers and universities among those that may be failing to protect confidentiality, says report

Putting Good into Practice: a public dialogue on making public benefit assessments when using health and care data Details This report is the first outcome of the Putting Good into Practice project, which is co-funded by the National Data Guardian for Health and Social Care, Understanding Patient Data and UK Research and Innovation’s Sciencewise programme. Previous research has shown that the demonstration of ‘public benefit’ is a crucial condition for most members of the public to suppor...