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February 18, 2022
Need to increase access to antivirals as society opens up, says advocate
February 1, 2022
Hundreds of thousands of people live with rare conditions in Ireland. Their needs are many and v...
January 31, 2022
Rare Disease Ireland says there is a need to increase resources for genetic services
October 25, 2021
/PRNewswire/ -- Global law firm Ropes & Gray announced today that 24 attorneys have been named partners of the firm, effective November 1. The new partners are...
October 25, 2021
/PRNewswire/ -- Global law firm Ropes & Gray announced today that 24 attorneys have been named partners of the firm, effective November 1. The new partners are...
May 26, 2021
People with rare diseases are being left behind by the Irish healthcare system, an Oireachtas committee has heard. The joint committee on health met on Wednesday to discuss improving the lives of those affected by rare diseases and their families. The committee heard that people with rare conditions struggle to access genetic testing and Irish patients have less access to new drugs compared to other European citizens. Witnesses at the committee also said the health system needs to train more...
April 14, 2021
TORONTO -- Around one in 66 Canadians are diagnosed with autism spectrum disorder, according to a 2018 report from the federal government. But autism spectrum disorder still remains poorly understood among Canadians who dont have autism, and the autistic community continues to face challenges that stem from this lack of understanding. For World Autism Month, several Canadians diagnosed with autism spectrum disorder have shared their experiences with CTVNews.ca. "The challenge is that ...
December 16, 2020
Premium Content Subscriber only THIS Christmas, two children who lost their beloved mum in a car crash will open the presents she chose for them before she died. And its partly thanks to the generosity of strangers. Vicky McGrath was killed in a crash at Beelbi Creek in October leaving her family devastated. Her mum, Sandra McGrath, said she and her grandchildren had lost not only their daughter and mum, but their best friend. "Our lives have been shattered into a million pieces," she said...