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People with rare diseases being 'left behind' by Irish health system

  People with rare diseases are being left behind by the Irish healthcare system, an Oireachtas committee has heard. The joint committee on health met on Wednesday to discuss improving the lives of those affected by rare diseases and their families. The committee heard that people with rare conditions struggle to access genetic testing and Irish patients have less access to new drugs compared to other European citizens. Witnesses at the committee also said the health system needs to train more...
United Kingdom Northern Ireland Sally Ann Lynch Vicky Mcgrath European Medicines Agency Children Health Ireland

'A unique way of communicating': Canadians with autism share challenges, debunk misconceptions about autism

  TORONTO -- Around one in 66 Canadians are diagnosed with autism spectrum disorder, according to a 2018 report from the federal government. But autism spectrum disorder still remains poorly understood among Canadians who dont have autism, and the autistic community continues to face challenges that stem from this lack of understanding. For World Autism Month, several Canadians diagnosed with autism spectrum disorder have shared their experiences with CTVNews.ca.​ "The challenge is that ...
Bruce Petherick Vicky Mcgrath World Autism Month Minni Ang Canadian News Live Tv News
Source: ctvnews.ca

Strangers pay off crash victim mum's Christmas lay by gifts

Premium Content Subscriber only THIS Christmas, two children who lost their beloved mum in a car crash will open the presents she chose for them before she died. And its partly thanks to the generosity of strangers. Vicky McGrath was killed in a crash at Beelbi Creek in October leaving her family devastated. Her mum, Sandra McGrath, said she and her grandchildren had lost not only their daughter and mum, but their best friend. "Our lives have been shattered into a million pieces," she said...
Beelbi Creek Hervey Bay Sandra Mcgrath Vicky Mcgrath Big W Pop Up Homes

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