Vicky Mcgrath News Today

Gillian Stafford was showing symptoms of retinitis pigmentosa from the age of five but was not diagnosed until she was 18

The title of the campaign 'I Am Number 17', reflects the fact that 1 in 17 people in Ireland will be affected by a rare disease at some point in their lives

A new awareness campaign featuring 17 people with rare diseases  has been launched. The ‘I am Number 17’ campaign sees people from across Ireland share

Rare diseases affect around 6% of the Irish population, figures show.

Only 13pc of people who claim to have an awareness of the term “rare disease” could correctly identify a condition, a survey has revealed.

I am Number 17 is a campaign to raise awareness and for early diagnosis for rare disease

Target date of autumn 2024 set for new proposals

Rare Diseases Ireland (RDI) estimates that 300,000 people in Ireland, or one in 17 people, are living with a rare disease, of which there are more ...

A Cork mum opens up about the ‘lack of support’ in the diagnosis and treatment of her son’s rare condition, writes CHRIS DUNNE

This community exhibit inspired by scenes from the sea can be viewed in the  Community Galleries of the Rogers Free Library now until July 20, 2023.