The rare disease films raising greater awareness : vimarsana

Twins Lucy Smyth and Zoe Buxton have a condition that is considered one of the rarest in the world.

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United Kingdom , County Antrim , Ballymena , Northern Ireland , Craigavon , Niall Mccracken , Patrick Toland , Zoe Buxton , Lucy Smyth , Northern Ireland Rare Disease Partnership , Northern Ireland Rare Diseases Implementation Group , Frank Foundation , Department Of Health , Rare Stories , Fibrodysplasia Ossificans Progressiva ,