Anna, Judah and Maddie all had epilepsy and they died from a rare and under-researched condition called Sudden Unexpected Death in Epilepsy (SUDEP). Their families, carrying the weight of unimaginable grief, are determined to find answers, but little is known about SUDEP and why it occurs. Anna set an alarm to wake up in the morning before drifting off to sleep. The next day her parents heard her alarm ringing continuously and called out to her. They then went to rouse her but she wouldn't wake. Gold Coast girl Anna Fairleigh, who died from Sudden Death from Epilepsy (SUDEP). In a cruel twist of fate, Anna's life was cut short the same day her parents were due to celebrate their 21st wedding anniversary.