Transcripts For BBCNEWS BBC News At Five 20170724 : vimarsan

BBCNEWS BBC News At Five July 24, 2017

Colluding with russia during the president ial election. Hes appearing before a Senate Investigations panel. The government promises an energy revolution, investing hundreds of millions pounds in Battery Technology. And 20 years after her death, Prince William says he often talks of granny diana to keep his mothers memory alive for his children. Its five oclock, our top story is that the parents of the terminally ill baby, charlie gard, have ended their legal fight to take him to the United States for experimental treatment. The high court was told they now accepted no medical treatment could help him. Charlies mother, connie yates, said she believed time had been wasted and earlier treatment could have improved the quality of her sons life. Speaking Outside Court a short time ago, charlies father, chris gard, said they now planned to spend some last Precious Moments with their son. Helena lee has been following the case at the high court and we canjoin her now. It has been a distressing afternoon at court. We expected to hear more evidence from that meeting between the american doctor who had proposed that experimental treatment on charlie when he came over last week to london. He met with medical staff at great ormond street and they carried out an mri scan on charlie. But instead this afternoon, we have heard from the lawyer representing charlies parents that time had run out for the baby, they said. They had looked at the mri scan and realised that charlie is brain damaged and it is irreversible. And the therapy will no longer help them. Charlies mother connie said some words in Court Earlier today and many people in court broke down in tears, including some members of the legal team. This has been a complex and emotive case and with the background, here is our correspondent. Justice for charlie it is the Ha Rd Est Justice For Charlie it is the hardest thing we will ever have to do. That is what charlies parents said. Let their Beautiful Boy go and be with the angels. Wean your son, which is why we continue fighting. Charlie has been left with his illness to deteriorate devastatingly to the point of no return. This is also never been about payments interests. All we wanted to do was ta ke interests. All we wanted to do was take charlie to The One World Renowned Hospital in an attempt to save his life and be treated by the world leader in the disease. We will have to live with the what Ifs Double Haunt Us for the rest of our lives. Our son is an absolute warrior and we could not be prouder of him. And we will miss him terribly. His body, Heart And Soul may sooii terribly. His body, Heart And Soul may soon be gone but his spirit will live on fertility and he will make a difference to peoples lies for years to come. Live on for eternity. We will make sure of that. Were now going to spend our last Precious Moments with our son, charlie, who will not make his first birthday injust charlie, who will not make his first birthday in just under two weeks time. Charlie, mummy and daddy love you so much. We always have and we always will and were so sorry we could not save you. Sweet dreams, baby. Sleep tight, our beautiful little boy. We love you. Chris gard connie yates have been by charlies side throughout. He was born last august, a seemingly healthy baby. And after a few weeks, it became clear something was wrong. He was diagnosed with a very rare genetic condition causing Muscle Wastage and brain damage. In march this year, the medics at Great Ormond Street Hospital determined that such was charlies condition, his treatment should be withdrawn and he should be allowed to did i die with dignity. His parents could not except the decision and believed there was still hopeful son. An Online Campaign garnered support and nations reaching over £1 million to pay for experimental treatment at a hospital in america, treatment so new that it had never been trialled on animals or humans with the rare genetic disorder. However, judges at every level to the European Court determined that would not be in charlies best interests. Throughout the long legal process, the relationship of the parents and the hospital deteriorated. Relationship of the parents and the hospital deterioratedlj relationship of the parents and the hospital deteriorated. I still do this they cannot get my head around it. We took him to the hospital. They dont want to do the treatment but there is someone out there that does. And they basicallyjust kept him a prisoner there. Our parental rights were stripped the minute we took him in the. And in hindsight, thatis took him in the. And in hindsight, that is when we lost. Then came a series of high profile interventions from pope francis, the vatican offering to transfer charlie to rome. President trump tweeted that he would be delighted to help. White house officials balked at the family in hospital. The Foreign Office got involved. And today charlies pa rents involved. And today charlies parents ended their fight. Great ormond street hospital had gone back to court after the family said that there was new information. But after examining charlie, an american doctor who said he could help told them it wasnt possible. All the doctors agree that damage to his muscle and tissue was irreversible. Great ormond street hospital said that the agony, desolation and bravery of the payments decision and the utmost respect. Lets rejoin our correspondent at the high court. This seems to be the End Of The Road in this terrible case. The doctors must now work regime for simply offering Palliative Care for Little Charlie. Thats right. And they have a court order that is in place now. That is what will happen. Charlies parents left the high court here in the last half an hour or so. We assume that they have now gone to great ormond street, which is about one mile is a lwa ys street, which is about one mile is always review, to be by charlies bedside. They say that they were to spend their last Precious Moments into the sea, and what will happen next is is very difficult and private discussions between themselves and medical staff. The doctors and nurses who are treated charlie for the last six or seven months in Intensive Care. He needs a ventilator to believe at the moment and he cannot swallow. He has very limited senses. His brain is damaged. So that conversation will be had at some stage in the very near future as to how the parents would like to proceed, how and when they want that to happen, for charlie to be moved from intensive Ca Re Charlie to be moved from Intensive Care to that palliative to regime to die, as Great Ormond Street Has said all along, to die with limited. 0k, all along, to die with limited. Ok, thank you. Die with dignity. Well dr bruce cohen is the director of the neuro developmental Science Centre at akron Childrens Hospital in ohio. Hes an expert in Mitochondrial Disease, and has been following the charlie gard case. Thank you very much indeed for joining us. It is good to see you. Chris gard, charlies father, said, we will have to live with the what if the mac for the rest of our lives. And the argument from the family is very much that the doctors are great ormond street did not act quickly enough, that the Brain Deterioration from last january until now is simply too far gone for any kind of help to be given to charlie. Is that a Fair Assessment . Well, i first heard charlie. Is that a Fair Assessment . Well, ifirst heard of charlie. Is that a Fair Assessment . Well, i first heard of charlies pa rents well, i first heard of charlies parents decision a few moments ago. Iam parents decision a few moments ago. I am deeply moved by both his mother and fathers comments. I want to Point Out One of the things his father said. Charlie, in Point Out One of the things his fathersaid. Charlie, in his Point Out One of the things his father said. Charlie, in his short life, has been an outstanding teacher and educator. What he gives to the world, Teaching Millions and millions of people about Mitochondrial Disease, isjust. People live their whole lives and do not make an impact that charlie made in the last few weeks, as we have heard more about him. I wish i could tell you definitively an answer to your question, but what we do not know is that in 2017, we have treatments available to us that we did not have an 2016 that a changing lives and will change the lives of children and adults with Mitochondrial Disease. Treatment is being developed today that had existed one year ago, would result in people being alive today. So, we are the real reasons edge of medicine moving forward. It is a very exciting time in medicine but this whole case, unfortunately, left charlie behind. What would you agree that there was a small window of opportunity, just a few months, within which perhaps this experimental treatment could have been tried and could have had success , been tried and could have had success, probably, more than likely, according to the percentages, 10 chance of success, 90 chance of failure. By that window of opportunity was squandered. That is what the family suggests. Opportunity was squandered. That is what the family Suggestslj Opportunity was squandered. That is what the family suggests. I just dont know the answer to that. I wish i could tell the family one way 01 wish i could tell the family one way or the other. His father says they will have to live with this uncertainty for the rest of their lives. That is a burden that no one would be able to take away from them. What we do know is that his Mitochondrial Disease was one of the worst. Results in certain death. It would also know that this new experimental therapy has shown, certainly in Animal Models and some humans, some benefit. Unfortunately for charlie, wejust humans, some benefit. Unfortunately for charlie, we just wont know the a nswer for charlie, we just wont know the answer that starting treatment one month, two months or three months ago would have been helpful. One wonders, as you have been outlining, the continuing move for the research and development and the possibility of finding new treatments and cures for that then the line in the future. One wonders of the courts are the right place to be discussing this kind of thing. I mean, it feels as if, if maybe american doctors could have had a conversation with british doctors are charlies bedside months ago, then we might not have gone down this road. With medical decisions such as these, we would love to keep them out of the courts as much as possible. Really, the best conversations and decisions are generally made with parents and physicians looking at each other face to face and try to figure out what is best for the child. Ijust dont know the details of the timing of this case to really comment on the specifics or give you answers to the specifics or give you answers to the specifics or give you answers to the specific questions you have. My knowledge of this case is what i read in the newspapers. It is good to see you. I give joining read in the newspapers. It is good to see you. I givejoining us. Thank you forjoining us. Lets move on to some of the other news today. Donald trumps son in law and senior advisor, Jared Kushner, is appearing before a special us Senate Investigations panel, looking into alleged collusion between moscow and the trump 2016 president ial campaign. In a written statement, issued before the Closed Door Session, mr kushner insisted he hadnt had any improper contacts with russian officials. Our correspondent andy moore has the details. Jared kushner set out from his home in washington today for the short journey to the senate buildings. Ahead of the hearing, he released an 11 page statement giving his side of the story. Mr kushner, was it appropriate for you to meet with the russian officials . There has been much speculation about what will come out of todays Closed Door Session. Jared kushner, the president s son in law. The Person Of Interest has a name and that name isJared Kushner. Jared kushner is not used to being centrestage. As one of Donald Trumps closest advisers, he has been silent at his side, seen but rarely heard. But he has done some talking with russians. First with the Russian Ambassador sergey kislyak, and then with this man, sergey gorkov. He is the head of a russian bank tied to the kremlin. When asked by the bbc about the subject of that meeting, he said, ask the white house. The revelations made mr kushner front page news. His Father In Law did not seem to pleased. His Father In Law did not seem too pleased. Jared has actually become much more famous than me. I am a little bit upset about that. Now, in a statement before his committee appearance, mr kushner has said that he had four contacts with russian officials but denied any wrongdoing. He said. Mr kushner was also part of the meeting with the russian lawyer arranged by Donald Trumer in a series of e mails that promised dirt on hillary clinton. He is bound to be asked about it in congress today. We want to know whether these meetings took place, whether other meetings took place, and we have a lot of ground to cover. Some democrats have described mr kushner as a threat to national security. But republicans say that this is his chance to clear things up. The whole purpose of the meeting is weve got to explain, heres how i met the Russian Ambassador, heres what we talked about, heres how i met the banker guy, heres what we talked about. Heres how i found the e mail about the meeting. And once he gives his side of the story, then we can make an informed decision. Yesterday, the white house said it hoped mr kushners appearance before congress would be the last time he would have to talk about russia. That is very unlikely. Laura bicker is in washington for us. By by all accounts, he is still being grilled. With the way these things 90, grilled. With the way these things go, something is bound to leak out, even though it is behind closed doors. Any sense of what is going on in there . Lets start with that statement. He was clear and said there was no collision on his part or anyones party knew of only Trump Campaign with russia. But he did go into more detail about that meeting he had with a russian lawyer. That lawyer that promised them incriminating evidence about hillary clinton. And in the e mail chain, it did say that that evidence and incriminating evidence was being given because of russia and its governments support for dommett de macdonald trump. When it comes to that e mail, Jared Kushner says he did not actually look at the details. And when he went to the meeting, he turned up late and during the meeting he said it was a waste of time. There was no evidence giving. He said he tried to leave early. He had other meetings with the Russian Ambassador and the head of the bank linked to the kremlin but he said he did that to try and gain russian contacts so that there could be some kind of development between russia and the Trump Administration once they took power. But he said they took that meeting but the key thing is there was no contact before that time. One other thing he has done with that statement is diffused many of the bonds on the front pages in the last year months. But if anything else notice from the hearings, he could be in difficulty. We expect to hear from Jared Kushner himself from the white house with the statement in the next hour and well bring you that here on The News Channel if we can. Indeed. Thank you. The government is promising what it calls a revolution in the way electricity is generated, used and stored, saying households could save up to £40 billion by 2050. A special fund to Award Hundreds of millions of pounds to companies researching Battery Technology is being created, part of a broader strategy to help the uk become much more flexible in its energy production. Heres our environment analyst, roger harrabin. The future of motoring looks electric as governments strive to combat pollution and climate change. Batteries are still big, heavy and expensive. It needs a solution. In birmingham, the Business Secretary put batteries at the heart of his industrial strategy. Joining

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