Transcripts For MSNBCW The Last Word With Lawrence ODonnel 2

MSNBCW The Last Word With Lawrence ODonnel September 1, 2019

The hurricane track on this program at the end of this hour. And thats afternoon important time because just toward the end of this hour when is we will get the very latest forecast from the National Hurricane center. That should be coming out, and we should have it for you here at the end of this hour. And there are military storm clouds near the russian border tonight with georgia. It is another demonstration of russian adwregs toward its neighboring countries that could become another International Crisis over this weekend created by Vladimir Putin at a time when President Trump is saying he wants Vladimir Putin and russia to be welcomed back into the g8. Russia expert Evelyn Farkas with her take on what Vladimir Putin is up to now and what the president of the United States should be doing about it. And our secondfavorite rachel will be back with us tonight. Political scientist rachel vidikoffer will give more explanation of why the data she is using in her election model has given her a prediction of the democrat, whoever the democrat is, winning a solid electoral victory in the Electoral College in the next election. And we begin tonight where we left off last night, with the clock ticking on the death sentence, the Trump Administration has, we hope unwittingly, imposed on maria isabel pueso this is the most important story we discussed last night and it is the most important story we will discuss tonight ar life hangs in the balance because of an immigration policy change made by the Trump Administration which has decided to refuse to grant any extensions of permission to stay in the United States for medical treatment. That decision has been met by understandable outrage and moral condemnation since the story first broke. That radio station, wbur in boston, and then in the boston globe, and then yesterday in the new york times. And that moral condemnation is completely understandable. But i for one am going to leave that out of what i have to say about this story. Because we are presenting this story again tonight with an objective. The goal here is to inform you of the news of what your government is doing, but possibly even more importantly in this particular instance, the goal here is to save a life. And the people who have the power to intervene and save this life will not hear the plea for her life. If it is hurled at them wrapped in moral outrage. The government officials who can change this death sentence in the coming days cannot be condemned into changing their policy. But they might be persuaded to change their policy if we keep telling them the story of Maria Isabel Bueso. She came to this country when she was 7 years old at the invitation and request of my first guest, dr. Paul harmatz, who told isabels story to Rachel Maddow last night. He needed patients to conduct Clinical Trial forth a rare disease, and he could not find enough patients for this rare disease study in the United States. Theres the full formal name of the disease on the screen right now. The professional shorthand for it is mps6. It cause is spinal cord compression and other growth abnormalities. And dr. Harmatz convinced isabels parents to bring her to the United States to help medical research, to help other children who would be born with her condition. Isabel is now 24 years old. She has been participating in medical studies throughout her life in the United States. Her doctor credits her with helping him and his Research Team make dramatic breakthroughs that have helped people with her disease live longer. Patients with her disease used to live just a bit beyond the age of 20. Now with isabels lifelong participation in these studies, patients can now live longer than 30 isabel graduated from College Summa Cum Laude last year. She received a letter saying if she doesnt leave the country within the next 33 days, she will be deported. Every day between now and her deportation order, we are going to try to find a way to persuade the people in the Trump Administration who are doing this, doing this to this patient, to change their minds. Because this is what isabels doctor told rachel last night. Youre really handing her a death sentence. Its as if were pulling the plug on a respirator or stopping feedings for a patient that needs that type of support. I think its fair to assume that no one in the Trump Administration who participated in this change of policy decision has ever heard of the disease that isabel struggles with. I certainly have never heard of it. And the disease that isabel has helped find medical breakthroughs for treatment. They could not have known that they were sentencing isabel personally to death with that letter. But after this weeks News Coverage of the story, many of them do know now. We have to try to make sure that they all know in the hope that somewhere we will find a sympathetic ear connected to an open heart, someone who can begin to turn this decision around in the days that are left before isabel is scheduled to be deported to her death. Politics of governing is far more complex than the politics of campaigning. And the politics of campaigning, you are just trying to beat the other side. The politics of governing, you are trying to persuade the other side. In your own lives you know the tone and vocabulary that you adopt for persuasion is very different from the tone that you bring to open argument. If isabel is deported to her death, if the day comes that we must report at this hour that she has died in guatemala because she was deported and denied medical treatment to help keep her alive, there will be moral outrage. There will be condemnation. But as long as there is a chance to save her life, we are going to work on this story the way i worked on legislation in the United States senate when i was a democratic staffmember trying to persuade senators on the other side to change their minds. So were going to frame our coverage of this story in optimism. Our coverage of this story will be based on the hope that someone will persuade the Trump Administration that isabel should be rewarded for what she has done in this country, rewarded for what she has done for medical research, rewarded for the lives she has saved with her participation in medical research. Lives she has improved and lengthened because of her participation in medical research. We hope that someone will persuade the Trump Administration to reward Maria Isabel Bueso with her life. And no one is more persuasive in telling isabels story than the medical hero who has kept her alive longer than anyone thought possible when she was a little girl in guatemala. And longer than anyone thought possible when she ra arrived in california at age 7. So it is my honor to begin our discussion tonight with that medical hero, dr. Paul harmatz who joins us now. Doctor, thank you very much for joining us again tonight. I know your schedule is difficult. But it is important to you and so joining rachel last night, joining me tonight, i think is at this stage possibly the most help that you can bring to your patient. So thank you very much for joining us. Thank you, its been a whirlwind two or three days. Were beginning to see some hope. And the responses that were getting on the internet, by phone calls, by people parents of patients with rare diseases, similar diseases that i take care of that are asking how they can help and people calling who we dont know that are just giving suggestions and leaving messages. I think its really beginning to move people that this is a crisis. And its a crisis not just for isabel but for all of these very rare disease patients that are being asked to leave the country. I also im not a hero. Im a pediatrician. Ive followed some great scientists with these studies and really want to give them credit. It was the perfect time to bring a unique therapy. We can therapy amal kakis was one of the inventers of this therapy when it was first brought to the human for mps1. He helped move this forward for mps6, which was the second disease that was had therapy developed in this group. It was a tremendous breakthrough to be able to give the patients back the missing enzyme. It was a breakthrough of new science, genetics, all of the ability to do gene therapy within cells and make this protein that we can infuse each week. And the future is open. I mean, thats the amazing thing is that isabel is healthy and bright and vigorous and were within a few years of being able to do gene therapy. Trials are ongoing in italy for gene therapy for mps6. We just need a few more years to bring this therapy to isabel so she doesnt need these infusions weekly that she can make her own enzyme, you know. It would be it will be an unbelievable tragedy if shes taken off enzyme and is not able to reach this permanent solution. I have to believe that assess bell is more than just a patient to you after almost 20 years now of treatment and working together. Shes been a contributor to your research, and im sure one of the real friends, important friends in your life. She is. Its a small community. We only have 50 to 100 patients in the u. S. I know most of the patients with mps6 over having worked with this disease for 20 years. And i travel around the world and try to meet as many patients as i can. They know each other, especially the young adults that have grown up with the disease and now have hope that they can lead reasonably long and productive lives. And you know, this is really hitting the entire community. You know, it takes the wind out of them to think that this unique therapy thats keeping them alive is being pulled away from somebody that is doing well with it. So, you know, anything anything that were doing with media and with congressional help, and well potentially can break through this barrier and keep the therapy going. If you had a minute with President Trump what would you tell him about isabel . I would say that shes a delightful, vigorous, productive person. Shes she loves to dance. She has many friends. Shes always thinking about how she can help other people. She actually even in high school was organizing rare disease day to help educate her friends and schoolmates about rare diseases. Shes spent time in every year she travels to washington to participate in congressional meetings on rare disease day, lobbying congressmen, educating their offices. She really is a an engaged person. I think thats the way to say it. And she will produce many positive benefits that we hope all of our children are able to do when they grow up and become adults. And this would be a tragedy to take this opportunity to live and contribute away from her. Dr. Paul harmatz, thank you very much for taking the time to join us tonight, we really appreciate it. Thank you, lawrence. And we turn now to the politics of governing. The politics of persuasion. And what it might take to convince the Trump Administration to save isabels life. Joining us now is maria estevete, former chief of staff to president clinton and lecturer at university of California Berkeley School of law. Thank you for joining us tonight. Youve worked in a president ial administration. You know the way the thinking works. You know the way persuasion works. What would you suggest as an approach to try to persuade the Trump Administration to pull back on what is a death sentence . I think the first thing to focus on is understand what is motivating this administration, to try to figure out how to persuade them. Unfortunately, every step that this administration has taken on immigration is really rooted in what i believe is an effort to take discretion out of the system. Because thats what this new rule is, to just sim mary say, youve been here, were no longer accepting as a reason for you to be able to stay here that you are having critical essential medical treatment. It is to take that increase and to basically lose the humanity. Hide the humanity of immigrants. So im sort of at a loss, frankly, lawrence, to say how i would persuade this administration to withdraw this draconian view of immigrants as sort of not human. That they dont have stories and theyre individuals and that immigration authorities ought to be able to look at the context of each particular case and determine, in this case of isabella, this is a case of life and death as you heard from dr. Ha harmatz. To expel her from this country, to deport her from this country . Its frankly an act of murder. Because she cant get this treatment in guatemala. How i would persuade this administration . Somewhere weve got to find a way to appeal to that there must be some humanity in them somewhere, dont you think, lawrence . I do. And thats exactly the perspective from which im covering this story. And i hope that it can reach people who have access to the president. To make this case to him. This is a president who reportedly at the time was moved by photographs of a child in syria who was a victim of what was happening there. He was moved to missile strikes, according to the white house reports on this. His daughter presented him with these photographs. And so if theres any truth to that, if theres just a sliver of truth to that, it seems to me that somewhere in that area is a space where Something Like this could break through. I want to read from the letter, basically the deportation letter that was sent to isabel. We have a copy of it. It says it was dated august 13th and giving her 33 days from august 13th. And it says, if you fail to depart the United States within 33 days of the date of this letter, we may issue you a notice to appear and commence removal proceedings against you with the immigration court. So 33 days from august 13th is september 15th. So on september 15th, they may commence send her a notice to appear to commence removal proceedings. Do you have any estimate of if she gets one of those notices to appear, will it be appear within a week . Appear within two weeks . What timetable no, they will set a date. And she will need to appear. And lets be clear. There will be some time, but we also know from other efforts within the administration to speed up those processes, right . To not give people the time to really prepare their case. But i want to say, in a case like this, when your health and mention wellbeing is part of your ability to survive, imagine the stress and the damage that can happen to this young woman. So it is very likely that it will be several weeks, perhaps a month. But the important thing is no one should with this kind of condition, where leaving the country would be a death sentence, why does she have so to through this . And why should others not be able to present their case in a way that doesnt make them feel like their life is on the line, which is literally what is going on in this case. I do want to say one thing. Maybe, when you think about persuasion, you know, Stephen Miller is, as we know, if not the architect of this president S Immigration policy, pretty close to it. What would it take to persuade him to think of human beings when hes coming up with these policies, that these are lives and families and individuals, human beings with as much right to dignity as he has himself . Well, you know, i think the way a lot of these policies have been developed, its entirely possible that the president himself knew nothing about this decision when it was made, knew nothing about these letters going out. And i actually in this case hope that is true. So that the knowledge of it might be something that he can choose to reverse the more we get attention to this. Maria, thank you very much for joining us on this subject tonight, we really appreciate it, thank you. Great to be with you. And after this break coming up, weve just had a week of terrible polls for Donald Trumps reelection prospecks. Political scientist rachel vidikoffer is back with us tonight after this weeks polls added even more support to her Electoral College model that now shows the democrat, whoever that democratic nominee turns out to be, winning the Electoral College with at least 278 Electoral College votes. Breaking news following out of texas tonight. At least five people dead, more than 20 injured in a shooting rampage. Police say it started at a traffic stop where the suspect then opened fire. He went on to hijack a u. S. Postal service truck, then shoot at random people before being shot and killed by police. Three Law Enforcement officers were among those injured as well as a 17monthold child. Seven of the victim remain in critical condition. So you only y for what you need. Nice. But, uh. Whats up with your. Partner . Not again. Limu thats your reflection. Only pay for what you need. Liberty, liberty, liberty, liberty were pretty different. vo everyone in your family is different. Thats why verizon lets everyone mix and match different unlimited plans, so you only pay for what you need. Switch now to verizon. New plans start at 35. Just 35. The network more people rely on gives you more. Now to the return of our secondfavorite rachel. Very bad polls for Donald Trumps reelection prospect, quinnipiac showed him losing on oneonone matchups with the top five president ial candidates, and losing to four by doubledigit mar giants. Joe biden 54 against 38 . Bernie sanders 5339. Elizabeth warren 5240. Kamala harris 5140. Pete buttigieg 4940 in the quin pe yak poll. Tonight the latest polling supports political scientist rachel bidikoffers polling showing the same election pod delling th

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