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Marley's family shares story during Rare Disease Week to raise awareness


Marley s family shares story during Rare Disease Week to raise awareness
and last updated 2021-02-23 06:05:30-05
GRAND RAPIDS, Mich. — Tuesday marks the start of Rare Disease Week, recognizing the nearly 30 million people in the U.S. who are affected by a rare disease.
Marley Berthoud of West Michigan was diagnosed with Bachmann Bupp syndrome. She was the very first human to be given that diagnosis, and since then there are now a few more people worldwide who have been given that diagnosis.​
Her mother Kelly had a normal pregnancy, but when Marley was born there were a lot of neurologic deficits that led doctors to take an MRI at her birth. That’s when they found a massive brain hemorrhage. After a year and a half, the family had been to multiple doctor appointments trying to find answers when they finally sought out a genetics consult. ....

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Helen DeVos Children's Hospital marks 10-year anniversary of 'big blue building' on Medical Mile


Helen DeVos Children’s Hospital marks 10-year anniversary of ‘big blue building’ on Medical Mile
Updated Jan 11, 2021;
Posted Jan 11, 2021
MLive File Photo. Helen DeVos Children s Hospital in Grand Rapids, Mich. Brian Hayes | MLive.comBrian Hayes | MLive.com
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GRAND RAPIDS, MI Spectrum Health Helen DeVos Children’s Hospital is celebrating 10 years at its landmark blue building on Michigan Street along Grand Rapids’ Medical Mile.
The 14-story, $286 million building, which has 234-beds and provides treatment to infants, children and adolescents from Michigan and beyond, opened on Jan. 11, 2011.
“Those who saw the need years ago for specialized care for our youngest patients were true visionaries,” Tina Freese Decker, Spectrum’s president and CEO, said in a statement. “Without them, Helen DeVos Children’s Hospital would not be the vital community resource it is today.” ....

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Santa visits Helen DeVos Children's Hospital virtually


Santa visits Helen DeVos Children s Hospital virtually
Santa has visited kids at Spectrum Health Helen DeVos Children’s Hospital for years, but this year he had no choice but to make the visit virtual.
Credit: Helen DeVos Children s Hospital
Author: 13 ON YOUR SIDE Staff
Published: 2:38 PM EST December 17, 2020
Updated: 2:38 PM EST December 17, 2020
GRAND RAPIDS, Michigan The holidays are looking a little different for everyone this year, Santa and Mrs. Claus included.
Santa has visited kids at Spectrum Health Helen DeVos Children’s Hospital for years, but this year he had no choice but to make the visit virtual to ensure social distancing for all. ....

Spectrum Health Helen Devos Children Hospital , Helen Devos Children , Spectrum Health Helen Devos Children , ஸ்பெக்ட்ரம் ஆரோக்கியம் ஹெலன் டேவோஸ் குழந்தைகள் மருத்துவமனை , ஹெலன் டேவோஸ் குழந்தைகள் , ஸ்பெக்ட்ரம் ஆரோக்கியம் ஹெலன் டேவோஸ் குழந்தைகள் ,