Marley's family shares story during Rare Disease Week to raise awareness
Marley's family shares story during Rare Disease Week to raise awareness and last updated 2021-02-23 06:05:30-05 GRAND RAPIDS, Mich. â Tuesday marks the start of Rare Disease Week, recognizing the nearly 30 million people in the U.S. who are affected by a rare disease. Marley Berthoud of West Michigan was diagnosed with Bachmann Bupp syndrome. She was the very first human to be given that diagnosis, and since then there are now a few more people worldwide who have been given that diagnosis.â Her mother Kelly had a normal pregnancy, but when Marley was born there were a lot of neurol...
Source: fox17online.com