An experimental gene therapy was little Alissa's only hope. Now, instead of certain death, she faces an uncertain future.
An experimental gene therapy was little Alissa's only hope. Now, instead of certain death, she faces an uncertain future. Karen Weintraub, USA TODAY © Feldborg family photo Alissa Feldborg BOSTON — Thomas Feldborg and Daria Rokina set off nearly every afternoon to explore this city. They leave from their hotel in the Charlestown neighborhood, pushing their baby carriage, some days heading deep into downtown, others choosing a path along the Charles River. Every few minutes, Rokina stops to peek inside and check on 16-month-old Alissa. She gently rubs Alissa's chee...