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Alberta covering expensive SMA treatment for Fairview toddler ‘Mighty Max’ Replay Video UP NEXT An Alberta family is breathing a sigh or relief, knowing their two-year-old son can move forward with getting treatment for a rare disorder. Max Sych -- or “Mighty Max” as he’s been called — has spinal muscular atrophy Type 2, a rare, progressive disorder that causes muscles to waste away. When the little boy was first diagnosed late last year, he had access to Spinraza for treatment. The prescription drug could be given to Max for his entire life, and it can increase survival and moto...

Toddler 'Mighty Max' must now apply for Alberta government coverage of gene therapy for his rare disease. Social Sharing CBC News · Posted: Jan 27, 2021 4:18 PM MT | Last Updated: January 28 Max Sych is diagnosed with type two of spinal muscular atrophy (SMA) in November. His family in northern Alberta is trying to raise $2.8 million to pay for the world’s most expensive medicine. (GoFundMe) A temporary move by the Alberta government to cover the cost of a life-changing new gene therapy is a sign of hope for the northern Alberta family of a little boy dubbed Mighty Max. A Wednesday anno...

Posted: Dec 14, 2020 9:00 AM MT | Last Updated: December 14, 2020 Max Sych is diagnosed with type two of spinal muscular atrophy (SMA) in November. His family in northern Alberta is trying to raise $2.8 million to pay for the world’s most expensive medicine. (GoFundMe) Max Sych turns two years old next month, but he's already lived up to the nickname Mighty Max. Born nearly four months premature, he survived a brain bleed and bedside surgery while living his first three months in a neonatal intensive care unit at the Royal Alexandra Hospital in Edmonton.  Now, a month after he was diagn...