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Toddler 'Mighty Max' must now apply for Alberta government coverage of gene therapy for his rare disease. Social Sharing CBC News · Posted: Jan 27, 2021 4:18 PM MT | Last Updated: January 28 Max Sych is diagnosed with type two of spinal muscular atrophy (SMA) in November. His family in northern Alberta is trying to raise $2.8 million to pay for the world’s most expensive medicine. (GoFundMe) A temporary move by the Alberta government to cover the cost of a life-changing new gene therapy is a sign of hope for the northern Alberta family of a little boy dubbed Mighty Max. A Wednesday anno...

Article content Fourteen-month-old Kevin Verch loves bath time, music, being tickled and being part of any conversation. “He’s the happiest little boy. If people are talking, he wants to join in,” said his mother, Dana Pearce. We apologize, but this video has failed to load. Try refreshing your browser. 'It's crazy that it takes $2.8 million to give a child the best life that they could have' Back to video For the first half year of his life, “Lil Kev,” as he is known to his family, hit all of his milestones. But as he headed towards his first birthday, he started to lose strength...

Posted: Dec 14, 2020 9:00 AM MT | Last Updated: December 14, 2020 Max Sych is diagnosed with type two of spinal muscular atrophy (SMA) in November. His family in northern Alberta is trying to raise $2.8 million to pay for the world’s most expensive medicine. (GoFundMe) Max Sych turns two years old next month, but he's already lived up to the nickname Mighty Max. Born nearly four months premature, he survived a brain bleed and bedside surgery while living his first three months in a neonatal intensive care unit at the Royal Alexandra Hospital in Edmonton.  Now, a month after he was diagn...