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Executive editor Ray Kironas: I plan to continue that journey of storytelling in 2022. I hope you join me.

All that the government has offered the vast majority of rare disease patients is a crowdfunding platform where they can make a request for donations.

Brittle Bone Disease Campaigner Alec Cabacungan Says 'I'll Never Be Down' On 3/15/21 at 7:28 AM EDT Alec Cabacungan, an 18-year-old student and sports fan known for appearing in commercials for the Shriners Children's Hospital network, has spoken out about his journey and living with brittle bone disease. Brittle bone disease is also known as osteogenesis imperfecta, or OI. Cabacungan was admitted to one of the Shriners hospitals with the disease as a child. At age 12, he appeared in a commercial for the hospital network that touched many and helped raise funds through public donations. Fox N...

Brittle bone disease, a disorder leading to a lack of collagen in the bones, was little known in the 1930s when Margaret Wilson was born with it. Classified in varying degrees of severity, from bones

Candlelit ceremony for Dundonian founder of Brittle Bone Society Margaret Grant. Thank you for signing up to The Courier daily newsletter Something went wrong - please try again later. Sign Up A candlelit ceremony has been held to honour the life of Margaret Grant MBE, the Dundonian who founded the Brittle Bone Society. Margaret, 87, from Dundee, founded the charity in 1968 to support people like her with the rare bone condition Osteogenesis Imperfecta (OI). © Supplied by Brittle Bone Society Mourners at the digital ceremony for Margaret Grant. She received an honorary doctorate from ...