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of genetic conditions. # nala, charlie, nala, charlie shaw. this is the shaw family, from northumberland. mum and dad, ally and jake, and their two daughters, nala and teddi. i ve always said nala saved teddi s life. and that s how i ve wanted to think about it. whee! the family are living under the shadow of a devastating disease a rare life limiting genetic disorder called mld which is already taking a toll on nala. days out like this are one way the family are building happy memories with their girls. and there s one sure way to please any toddler. more cake? yes, more cake! nala was once just as lively and active as her younger sister. she was such a cheeky little character. she was always, like, kind of, singing, dancing, spinning around everywhere, always laughing. she was just a cheeky little girl. very theatrical, wasn t she? everything was all. every morning, i would do a little instagram video. yay! and everybody would message and just say how she brighten ....
this is the entrance to the park where richard was killed. the gunman laid in white in the secluded dark place at night. one way or another, that s an execution. absolutely. they were a busy married couple, meeting up for a romantic valentines night rendezvous. but that night, someone had other plans. he s been shot? he s been shot! before she even arrived, her husband was there. i just see him laying on the ground. i couldn t think of a soul who would want to harm this man. then, someone let a secret slip. soon, people were questioning a suspect with the motive. he suddenly changed his look. and in fact, when he showed up that morning, he was fearless. there was only one problem, he had a rock solid alibi. where did that leave you? worried about my case. that is when the phone rang. a tip! a tire track! and a case one detective would never forget! there was a shot in the dark but i took it. hello and welcome to dateline. it was valentine ....
Done what was asked of l fear losing theirjobs. I e done what was asked of me. I went into the front line, ive done myjob, and now im just collateral damage. Done my job, and now im Ust Collateral Damagei collateral damage. They cared for us, collateral damage. They cared for us. Now collateral damage. They cared for us, now they collateral damage. They cared for us, now they are collateral damage. They cared for us, now they are asking, l for us, now they are asking, who is going to care for them . They arejust on who is going to care for them . They are just on a no mans land they are just on a no mans land we they are just on a no mans land. We dont have the support for them land. We dont have the support for them and actually that genuinely makes me angry. I was iwasa i was a power walker. Went everywhere as quickly as possible. Sometimes people think im a patient, rather than the doctor, until they see my badges and s ....
done what was asked of l fear losing theirjobs. i e: done what was asked of me. i went into the front line, i ve done myjob, and now i m just collateral damage. done my job, and now i m ust collateral damagei collateral damage. they cared for us, collateral damage. they cared for us. now collateral damage. they cared for us, now they collateral damage. they cared for us, now they are collateral damage. they cared for us, now they are asking, l for us, now they are asking, who is going to care for them? they arejust on who is going to care for them? they are just on a no man s land they are just on a no man s land we they are just on a no man s land. we don t have the support for them land. we don t have the support for them and actually that genuinely makes me angry. i was iwasa i was a power walker. went everywhere as quickly as possible. sometimes people think i m a patient, rather than the doctor, until they see my badges and so on. shall we listen to you ....
found in the river wyre close to where she disappeared. the mother of two was last seen walking her dog late last month. now on bbc news, bittersweet medicine. this is a story of hope. how a new treatment is stopping a devastating genetic disease in its tracks. we have had almost nothing to offer families with this condition for decades. bringing a new medicine to the world that can potentially cure these devastating diseases is incredibly satisfying and rewarding. how britain s most expensive medicine is giving children their lives back. it s amazing. i mean, she s such a little character and for her to receive this treatment is just an absolute blessing. they re literally walking, running miracles, you know? they shouldn t be here. i m fergus walsh, the bbc s medical editor. i ve been following the first patient treated by the nhs with this life saving drug, and meeting families affected by one of the rarest and cruellest of genetic conditions. # nala, charlie, nala ....