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Hemel parents launch petition to help dedicate funding for rare condition that is turning their daughter's body to stone

Hemel parents launch petition to help dedicate funding for rare condition that is turning their daughter's body to stone
hemeltoday.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from hemeltoday.co.uk Daily Mail and Mail on Sunday newspapers.

Hemel Hempstead , United Kingdom , Dave Robins , Los Angeles , Fopfriends Charity , Oxford University , Fibrodysplasia Ossificans Progressiva ,

Parents in 'race against time' as baby Lexi diagnosed with rare condition that turns the body to stone

Parents in 'race against time' as baby Lexi diagnosed with rare condition that turns the body to stone
hertfordshiremercury.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from hertfordshiremercury.co.uk Daily Mail and Mail on Sunday newspapers.

United Kingdom , Hemel Hempstead , Dave Robins , Los Angeles , Helen Bedford , Adam May , Friends Charity , University Of Oxford , Oxford University , Fibrodysplasia Ossificans Progressiva , Helen Bedford Gay , Iceberg Effect , Multimedia Journalist Adam May ,

5-month-old baby is 'turning to stone' due to THIS rare condition


5-month-old baby is turning to stone due to THIS rare condition - Know about it
The girl, Lexi Robins, was diagnosed with a condition that affects just one in two million people globally.
(Photo: Instagram/alexrobins )
Updated: Jul 5, 2021, 06:41 AM IST
A five-month-old baby girl in the United Kingdom has been diagnosed with a very rare incurable condition that turns her body into stone .
The girl, Lexi Robins, was diagnosed with a condition that affects just one in two million people globally.
Lexi seemed healthy at birth, but when her parents Alex and Dave Robins noticed an issue with her big toes, it led to the discovery that she was suffering with fibrodysplasia ossificans progressiva (FOP). ....

United Kingdom , Dave Robins , Lexi Robins , ஒன்றுபட்டது கிஂக்டம் , டேவ் ராபின்ஸ் ,

Hemel parents raise awareness of rare condition that could paralyse their five-month-old baby girl

Hemel parents raise awareness of rare condition that could paralyse their five-month-old baby girl
hemeltoday.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from hemeltoday.co.uk Daily Mail and Mail on Sunday newspapers.

Hemel Hempstead , United Kingdom , Dave Robins , Los Angeles , Fopfriends Charity , Fibrodysplasia Ossificans Progressiva , Fibrodysplasia Ossificans , ஹேமல் ஹெஂப்‌ஸ்டெட் , ஒன்றுபட்டது கிஂக்டம் , டேவ் ராபின்ஸ் , லாஸ் ஏஞ்சல்ஸ் ,