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People Donate Rs 16 Crore For Mumbai Child Who Needed Most Expensive Drug People Donate Rs 16 Crore For Mumbai Child Who Needed Most Expensive Drug In just 42 days, more than 2.6 lakh people donated enough money to pay for the one-time gene therapy Zolgensma for Spinal Muscular Atrophy. Dhairyarajsinh Rathod was diagnosed with Spinal Muscular Atrophy Type I. Mumbai: Paying Rs 16 crore for one injection may seem like an impossible task for most people but that is exactly what the parents of a five-month-old boy in Mumbai have managed to do - thanks in small part to generosity of over 2 lakh people they barely knew. ....
The drug costs Rs 16 crore and funds for the same are being crowdfunded in the state. Three-month-old Dhairyarajsinh Rathod, son of Rajdipsinh and Jinal Rathod, was diagnosed with SMA Type 1. The disease is rare and a genetic ailment that in its advanced stage makes it difficult for the child to carry out basic activities including vital functions like swallowing and breathing. It can be life-threatening. The drug Zolgensma used to treat the condition costs around Rs 16 crore and is said to be the costliest drug available. The family is from a humble financial background and is not in a condition to bear the expense. The family has resorted to crowdfunding for the child. Several groups in the state also did collections for the baby and have handed these over to the family. ....