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Rs 16 Crore Raised For 5-Month-Old In Mumbai With Rare Genetic Disorder


People Donate Rs 16 Crore For Mumbai Child Who Needed Most Expensive Drug
People Donate Rs 16 Crore For Mumbai Child Who Needed Most Expensive Drug
In just 42 days, more than 2.6 lakh people donated enough money to pay for the one-time gene therapy Zolgensma for Spinal Muscular Atrophy.
Dhairyarajsinh Rathod was diagnosed with Spinal Muscular Atrophy Type I.
Mumbai:
Paying Rs 16 crore for one injection may seem like an impossible task for most people but that is exactly what the parents of a five-month-old boy in Mumbai have managed to do - thanks in small part to generosity of over 2 lakh people they barely knew. ....

Rajdipsinh Rathod , Dhairyarajsinh Rathod , Neelu Desai , Praised For , Spinal Muscular Atrophy Type , Child Neurologist , நீளு தேசாய் , எழுப்பப்பட்ட க்கு , முதுகெலும்பு தசை அட்ரோஃபீ வகை , குழந்தை நரம்பியல் நிபுணர் ,

Spruce Grove mother and daughter nearing life-changing move


Author of the article: Rudy Howell
Publishing date: Apr 23, 2021  •  1 hour ago  •  3 minute read  • 
From left, Rick Lystang, Heather Forsyth, Pyper Whitecotton, Spruce Grove Mayor Stuart Houston, and Coun. Dave Oldham break ground on Forsyth s new home on Aspenglen Drive in Spruce Grove in November 2020. Photo by Evan J. Pretzer/Postmedia. Photo by Evan J. Pretzer
Article content
Pyper Whitecotton and her mother Heather Forsyth will soon live comfortably.
Since birth, the Spruce Grove teenager has suffered from Spinal Muscular Atrophy Type 2 (SMA2), a genetic neuromuscular disorder that affects the nerve cells which control voluntary muscles. Due to her disability, Pyper is bound to a wheelchair. ....

Spruce Grove , Rick Lystang , Pyper Whitecotton , Dave Oldham , Evanj Pretzer Postmedia , Rudy Howell , Heather Forsyth , Love For Lewiston Foundation , Spruce Grove Fire Services , Prostar Energy , Spruce Grove Mayor Stuart Houston , Aspenglen Drive , Spinal Muscular Atrophy Type , Edmonton Corn , Henry Singer Ballpark , Muscular Dystrophy Canada , Lewiston Foundation , தளிர் தோப்பு , டேவ் ஓல்ட்ஹாம் , முரட்டுத்தனமான ஹோவெல் , ஹீத்தர் ஃபார்ஸித் , தளிர் தோப்பு தீ சேவைகள் , ப்ரோஸ்த்ர் ஆற்றல் , தளிர் தோப்பு மேயர் ஸ்டூவர்ட் ஹூஸ்டன் , ஆஸ்பெங்லன் இயக்கி , முதுகெலும்பு தசை அட்ரோஃபீ வகை ,