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Life-extending cystic fibrosis drug Trikafta made available to children aged six and over under PBS

Trikafta was added to the pharmaceutical benefits scheme for people over 11 years of age a year ago. Now, it will be available at an affordable price for younger children too, in a hard-fought win for families. ....

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Miracle drug for sick kids delayed after Department of Health talks break down

Miracle drug for sick kids delayed after Department of Health talks break down
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Aussie woman living with cystic fibrosis forced to fork out $21,375 a MONTH just to survive

Jess Ragusa, from NSW s Central Coast, was born with cystic fibrosis, a life-shortening disease that causes cells to produce a thick mucus which damages the lungs and digestive system. ....

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COVID-19 proves no barrier to charity as LJ Hooker digs deep

Despite health restrictions curtailing the ability to hold events or meet face to face at certain points over the year, LJ Hooker offices have still managed to respond to the needs of their communiti ....

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Cystic fibrosis survivor calls for Trikafta to be listed on PBS

Cystic fibrosis survivor calls for Trikafta to be listed on PBS
updated 23
AprApril 2021 at 3:55am
Kerrie Taylor lives with cystic fibrosis, but a new drug has made a world of difference to her health.
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Key points:
People with cystic fibrosis call for a drug called Trikafta to be included on the PBS list
Kerrie Taylor says her quality of life and lung function have improved since taking the drug
Cystic Fibrosis Australia says the drug could be a game changer for many
She was not expected to have a long life.
There were lots of times that growing up you always hear that you might make it to 18, you might make it to 21, she said. ....

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