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Any high ranking political appointee at the white house? >> at the advice of counsel, i'm not able to discuss the reasons for any change. >> so all serena from spain knows is this. she is 14, has a rare heart defect that has already put her through five surgeries and her future remains wildly uncertain. >> i didn't think i had to come to d.c. to fight for my life. i only thought i had to go to the hospital for that. >> we reached out to immigration officials who told us once again they will have very little to say about this until this lawsuit is settled, but one official did say whether a ver...

>> was this a policy change that was a result of a request from any high-ranging political appointee at the white house? >> at the advice of counsel i'm not able to discuss the reasons for any change. >> reporter: so all serene aha s is she's 14 and has a rare heart defect putting her through five surgeries and her future remains wildly uncertain. >> i do think i had to come to d.c. to fight for my life. i only thought i had to go to the hospital for that. >> reporter: we reached out to the head of citizenship and immigration who once again told us they have little or nothing to say because of...

Including a 10-year-old salvadoran girl who died after seven months in u.s. hospitals for surgery on a congenital heart defect. today speaker pelosi seemed to blame the president. >> what they're doing is not right. ten years before this, not a single died in custody of the border patrol. now six children have died. >> reporter: many, however, had been examined medically before death. today migrants are screened in the field. now, migrants are going to the hospital 69 times a day. republicans are blaming democrats for not addressing the problem sooner. >> the president, his administration, req...

. hardly anyone knows this better than the people at the alliance of chronic rare diseases we're meeting christina moaned loss. whether voice of those affected by red diseases. that affect some four million people in germany alone but few of them suffer from the same rare disease. doesn't run in american terms it's normally a few thousand people but it can also be only a handful of patients worldwide get. patients like yourself initial it's who's ten years old today she was born with swellings had a heart defect. her parents went from doctor to doctor but no one could give them an answer it to...

New forms of research funding are particularly needed when no one else is investing hardly. anyone knows this better than the people at the alliance of chronic rare diseases we're meeting christina loss. with the voice of those affected by red diseases. that affect some four million people in germany alone but few of them suffer from the same rare disease. doesn't on any american terms it's normally a few thousand people but it can also be only a handful of patients worldwide. patients like josefina schultz who's ten years old today she was born with a swellings and a heart defect. her parents...