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$10K HAVEN Grant Helps Texas Army Veteran with Home Repairs

$10K HAVEN Grant Helps Texas Army Veteran with Home Repairs
streetinsider.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from streetinsider.com Daily Mail and Mail on Sunday newspapers.

Arkansas , United-states , Arizona , Louisiana , Afghanistan , Texas , New-mexico , San-antonio , Dallas , Mississippi , Greg-hettrick , April-niswonger

Medically Assisted Death 'Needs to Be a Good Choice, Not a Choice of Last Resort'

Gwen wants to live and care for her daughter. But the system makes it easier to seek MAID than treatment, she says.

Canada , United-states , Vancouver , British-columbia , Gwen-gofundme , Bunny-wilder , Lauren-clark , Fraser-valley , Lower-mainland , Medical-assistance , Hypermobile-ehlers-danlos-syndrome , Ehlers-danlos-syndrome

Frontiers | The Impact of Hypermobile "Ehlers-Danlos Syndrome" and Hypermobile Spectrum Disorder on Interpersonal Interactions and Relationships

Background: People with Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders are hampered in their social participation, especially in the social relationships they have. Objective: The aim of this study is to research the impact of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobile Spectrum Disorders (HSD) on interpersonal interactions and relationships. Methods: A phenomenological hermeneutic study was performed. Semi-structured interviews were used to explore the experiences of 11 participants. Results: Four themes emerged from the data analysis. (1) people with hEDS or HSD can no longer do what they want to do and that affects their identity, (2) people with hEDS or HSD have to find a balance in the amount of activities they participate in, (3) having hEDS or HSD influences how to ask for, accept and give help, and (4) Relationships are affected in persons with hEDS or HSD. As well as changes in the social network, different types of relationships are influenced by the disease, including relationship with their partner, their children, their friends, strangers, fellow-sufferers and health care professionals.

Belgium , Roma , Lazio , Italy , California , United-states , Tennessee , Netherlands , London , City-of , United-kingdom , American

Taunton mum left housebound and needing wheelchair after playing with kids causes devastating back injury

Taunton mum left housebound and needing wheelchair after playing with kids causes devastating back injury
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United-kingdom , Staffordshire , Ukraine , Ukrainian , Vikkie-setterington , Hypermobile-ehlers-danlos , Emily-eavis , Ehlers-danlos-syndrome , Hypermobile-ehlers-danlos-syndrome , Computer-games , Ehlers-danlos-syndrome-month

"Rare doesn't mean rare, this affects thousands of people"

The Northern Ireland Rare Disease Partnership celebrate ten years of hard work and look to the next ten years

Northern-ireland , Craigavon , United-kingdom , Ireland , Republic-of-ireland , Edel-rogan , Hypermobile-ehlers-danlos , Stephanie-duguez , Sandra-campbell , Rhoda-walker , Patrick-toland , Profit-company

'Everything became painful:' Eugene woman raises money for proper wheelchair

'Everything became painful:' Eugene woman raises money for proper wheelchair
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Hypermobile-ehlers-danlos , Jaxy-furst , Community-college , Lane-community-college , Postural-orthostatic-tachycardia-syndrome , Hypermobile-ehlers-danlos-syndrome ,

Long Covid cash branded 'too little too late' as children 'struggle on without specialist help'

Long Covid cash branded 'too little too late' as children 'struggle on without specialist help'
dailyrecord.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from dailyrecord.co.uk Daily Mail and Mail on Sunday newspapers.

Aberdeenshire , United-kingdom , Inverness , Highland , Scotland , Elizabeth-jelley , Hypermobile-ehlers-danlos , Helen-goss , Alex-cole-hamilton , Humza-yousaf , Harley-macmillan , Labour-party

Four OPRF High School seniors named semifinalists in Illinois BioGENEius challenge

Four OPRF High School seniors named semifinalists in Illinois BioGENEius challenge
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Former Rocky student shares 10-year journey to diagnosis

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Stacey Schmidt, a former Rockhampton Girls Grammar School student, wears silver ring-like devices on her fingers which, at first glance, look like some form of punk jewellery.
They are, in fact, finger splints which reduce the hyperextension and pain associated with her rare, genetic and chronic condition.
Ahead of Hypermobile Ehlers-Danlos Awareness Month in May, Ms Schmidt told the story of her diagnosis to
The Morning Bulletin.
What followed were three years of what she described as a “traumatic” journey.
The initial diagnosis of an iron deficiency did little to explain Ms Schmidt’s multitude of symptoms which impacted virtually every system and organ in her body.

Rockhampton , Queensland , Australia , Stacey-schmidt , Rockhampton-girls-grammar-school , Hypermobile-ehlers-danlos-awareness-month , Ehler-danlos-syndrome , Morning-bulletin , Hypermobile-ehlers-danlos-syndrome , ராக்ஹாம்ப்டன் , குயின்ஸ்லாந்து

Former Rocky student shares 10-year journey to diagnosis

Former Rocky student shares 10-year journey to diagnosis
gladstoneobserver.com.au - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from gladstoneobserver.com.au Daily Mail and Mail on Sunday newspapers.

Rockhampton , Queensland , Australia , Stacey-schmidt , Rockhampton-girls-grammar-school , Hypermobile-ehlers-danlos-awareness-month , Ehler-danlos-syndrome , Morning-bulletin , Hypermobile-ehlers-danlos-syndrome , ராக்ஹாம்ப்டன் , குயின்ஸ்லாந்து