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It took over three decades to unravel the mystery – a 2010 diagnosis revealed Jansen's, a disorder caused by a gene mutation that distorts bone growth.
Meta/User Description** A tireless search for her own diagnosis — and her sons' — pushed her to create The Jansen's Foundation, an organization that brings awareness, research funds, and hope for a cure to this rare and debilitating skeletal condition.
As Phoenix Children's continues to prioritize clinical excellence and translational research with the hope of advancing new treatments for devastating childhood illnesses, the health system has added another internationally renowned surgeon-scientist to its medical staff. Maegen Wallace, MD, MBA, a pediatric orthopedic surgeon and expert in osteogenesis imperfecta, or brittle bone disease, joined the Herbert J. Louis Center for Orthopedics and Sports Medicine at Phoenix Children's last month.
Flood waters surge into Linda Busch Benson’s Fort Myers home from the canal she lives on that empties into the Caloosahatchee River. ARTIST LINDA BUSCH BENSON and her Great Pyrenees dog, Elsa, spent the evening of Sept. 28 huddled together on top of her dining room table. Darkness fell as Hurricane Ian’s storm surge swirled
Flood waters surge into Linda Busch Benson’s Fort Myers home from the canal she lives on that empties into the Caloosahatchee River. LINDA BUSCH / COURTESY PHOTOS IN CHARLOTTE COUNTY, THE SEA Grape Gallery in downtown Punta Gorda faced setbacks but not complete destruction after Hurricane Ian roared through the area. Two artists representing the