Jen Ringler News Today : Breaking News, Live Updates & Top Stories | Vimarsana

Annie Kennedy, EveryLife Foundation for Rare Diseases
Elisabeth Oehrlein, National Health Council
Marissa Penrod, Founder and CEO, Team Joseph, mother of a young man with Duchenne
Esther Krofah, Milken Institute, Faster Cures (moderator)
About the Rare Disease Congressional Caucus
The Rare Disease Congressional Caucus, a bipartisan, bicameral caucus, provides a platform to educate and engage Members of Congress on policy issues impacting the rare disease community and gives rare disease patients a voice on Capitol Hill. The caucus is led by the co-chairs, Representatives G.K. Butterfield (NC) and Gus Bilirakis (FL) and Senators Roger Wicker (MS) and Amy Klobuchar (MN). ....

United States , Jannie Kennedy , Elisabeth Oehrlein , Esther Krofah , Marissa Penrod , Jen Ringler , Christopher Austin , National Economic Burden Of Rare Disease Study , Milken Institute , National Center , National Institutes Of Health , A Public Health Crisis , Members Of Congress , Team Joseph , Translational Sciences , National Health Council , Everylife Foundation For Rare Diseases , Everylife Foundation , Rare Disease Congressional Caucus , Rare Diseases , Rare Disease Legislative Advocates , Public Health Crisis , National Economic Burden , Rare Disease , Gus Bilirakis , Advancing Translational Sciences ,