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Florida Lawmakers Endorse Wide-Ranging Reforms in Program to Aid Brain-Damaged Babies


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NICA, as the program is called, came under fire this month when the Miami Herald, in partnership with ProPublica, began publishing a series of stories detailing the plight of families in the program, some of whom say they are forced to plead for medical care and services their children need. ....

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Florida Protects Doctors and Forces Families to Pay the Price


A neonatal intensive care unit. (Brad Greenlee/Flickr)
A birth gone horribly wrong left Jasmine Acebo with profound brain damage and a bleak future, one defined by wheelchairs, mechanical airways, feeding tubes, frequent hospitalizations, in-home nursing and constant pain.
Unable to work, her overwhelmed mother became dependent on food stamps and sometimes cash assistance. She watched helplessly when her newborn convulsed with seizures. She saw her daughter turn blue and nearly suffocate during a feeding.
A Florida program promised help: medical care, money for expenses a lifeline of support.
But that help, said Yamile “Jamie” Acebo, was often delayed, denied or deficient. And it included what she viewed as a shameful suggestion from a program administrator making a home visit: Would Acebo wish to place her daughter in an institution? The thought of Jasmine, surrounded by strangers and not the mother who loved her, was horrifying. ....

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Florida plans audit of program that blocks parents of brain-damaged newborns from suing


Florida plans audit of program that blocks parents of brain-damaged newborns from suing
Miami Herald (FL)
Apr. 9 Declaring that
Florida leaders can and will do better for the families of catastrophically brain-damaged children, the state s top financial regulator Thursday initiated an audit of the state program that oversees care for those injured in childbirth.
Chief Financial Officer
Office of Insurance Regulation, which he supervises, will examine the books of the state s
Birth-Related Neurological Injury Compensation Association, or NICA. Patronis office already has begun an inspection of the program, which was the subject of an investigative report in the Miami Herald Thursday. ....

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