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'Empowering': Rare Disease Week in DC to draw calls for change – NBC4 Washington

Patients will gather on Capitol Hill to talk to members of Congress and build community as part of Rare Disease Week. ....

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Duchenne Muscular Dystrophy Added to Minnesota's Newborn Screening Panel

/PRNewswire/ In a monumental stride towards improving the lives of children affected by Duchenne muscular dystrophy (Duchenne), Parent Project Muscular. ....

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Mandatory Newborn Screening for Duchenne Muscular Dystrophy in New York State Starting in 2024

In a groundbreaking achievement, Parent Project Muscular Dystrophy (PPMD) announced today that Governor Hochul of New York State has signed a bill making Duchenne newborn screening mandatory for all babies born in the state. This significant milestone is the result of years of dedicated advocacy by PPMD, in collaboration with partners and affected families, to remove barriers and improve care for the Duchenne community. ....

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Duchenne Muscular Dystrophy Added to New York State's Newborn Screening Panel

Duchenne Muscular Dystrophy Added to New York State's Newborn Screening Panel
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Duchenne Muscular Dystrophy Added to New York State's Newborn Screening Panel

/PRNewswire/ In a monumental stride towards improving the lives of children affected by Duchenne muscular dystrophy (Duchenne), Parent Project Muscular. ....

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