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Backlog in NHS genome service leaves families facing long wait for results

Exclusive: Experts say delays of more than a year risk children not getting relevant treatments or support ....

United Kingdom , Matt Hancock , Anneke Lucassen , Genetic Alliance United Kingdom , Genomics Medicines Service , Genomics Medicine Service , University Of Oxford , Centre For Personalised Medicine , Personalised Medicine , South East Genomics , East Genomics , Louise Fish , Genetic Alliance United ,

Céline Dion opens up about rare and incurable disorder

Céline Dion opens up about her health and the reason for her rescheduled European tour. The singer suffers from stiff person syndrome. ....

United Kingdom , Celine Dion , Dion Instagram , Las Vegas , Genetic Alliance United Kingdom , Louise Fish , Heart Will Go On Singer ,

'Nobody knows what's wrong with me' – life with an undiagnosed condition | Health & wellbeing

Every year thousands of children are born with serious yet unexplained health issues. With no diagnosis, they struggle to get medical treatment or much-needed support ....

United Kingdom , Builth Wells , Laura Parkes , Mandy Hughes , Shayley Clark , University Hospital Of Wales , Genetic Alliance United Kingdom , Welsh Health Specialised Services Committee , Syndrome Without , University Hospital , Swan United Kingdom , Louise Fish , Rare Disease United Kingdom ,

UK approval for Epidyolex to treat seizures from tuberous sclerosis

Approval represents a new indication for GW s cannabidiol in the UK - News - PharmaTimes ....

United Kingdom , Northern Ireland , Lennox Gastaut , European Union , Tuberous Sclerosis Association , Jazz Pharmaceuticals , Healthcare Products Regulatory Agency , Gw Pharmaceuticals , United Kingdom Medicines , Louise Fish , Epidyolex , ஒன்றுபட்டது கிஂக்டம் , வடக்கு ஐயர்ல்யாஂட் , ஐரோப்பிய தொழிற்சங்கம் , கிழங்கு ஸ்க்லரோசிஸ் சங்கம் , ஜாஸ் மருந்துகள் , க்வ் மருந்துகள் , ஒன்றுபட்டது கிஂக்டம் மருந்துகள் ,