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Kansas TikToker Named Marky Jaquez Dies at 21 From Rare 'Butterfly Skin' Disease - Vimarsana News

Kansas TikToker Named Marky Jaquez Dies at 21 From Rare 'Butterfly Skin' Disease

Epidermolysis bullosa is a genetic condition that causes the skin to be fragile and blister easily.

Wichita man with rare 'butterfly disease' dies at 21, mother says - Vimarsana News

Wichita man with rare 'butterfly disease' dies at 21, mother says

Marky Jaquez was diagnosed with the rare disease Epidermolysis Bullosa and wasn't expected to live past 14.

Source: kake.com
Non-profit visits Wichita home, spreads holiday cheer and Marvel - Vimarsana News

Non-profit visits Wichita home, spreads holiday cheer and Marvel

Marky Jaquez was diagnosed with the rare disease Epidermolysis Bullosa and wasn't expected to live past 14.

Source: kake.com