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/PRNewswire/ The National Niemann-Pick Disease Foundation (NNPDF), the leading advocacy organization for people living with Niemann-Pick disease in the. ....
The Straits Times Help pours in for siblings with rare disorder in Singapore Bakery owner Thrina Low (in white) with the Langs – (clockwise from top left) Mr David Lang and his wife Loo Geok, their son Titus and daughter Justina – in their home.ST PHOTO: KUA CHEE SIONG https://str.sg/3JW9 They can read the article in full after signing up for a free account. Share link: Or share via: Sign up or log in to read this article in full Sign up All done! This article is now fully available for you Read now Get unlimited access to all stories at $0.99/month for the first 3 months. ....
July 11, 2021 Bakery owner Thrina Low (in white) with the Langs – (clockwise from top left) Mr David Lang and his wife Loo Geok, their son Titus and daughter Justina – in their home. The Straits Times SINGAPORE - All three of Mr David Lang s children were born healthy, zipping through development milestones as they grew up. Justina, the eldest, could name 100 objects in a picture book at the age of one. Timothy, the middle child, would try and read everything he could. Titus, the youngest, could solve a Primary 2 mathematics problem when he was in kindergarten. But as they each grew older, they started falling more frequently when running, spoke less, and had seizures. ....
Emma Peterka, two, from Minnetonka, Minnesota, has been on a drug called adrabetadex, which helped her regain movement iand start communicating, after being diagnosed with NPC. ....
'You think that can't be my kid, that can't be what is wrong with them...' Young Wabash Valley girl battles rare disease wthitv.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from wthitv.com Daily Mail and Mail on Sunday newspapers.