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Starting Dialogue On Rare Disease In South Carolina

Starting Dialogue On Rare Disease In South Carolina
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South-carolina , United-states , Cortney-gensemer , Maysen-mesaros , Neena-champaigne , Olivia-thompson , Translational-research-institute , Rare-disease-advisory-council , Carolina-rare-disease-advocacy-council , Centers-for-disease , South-carolina-rare-disease-advocacy-council , Patrick-flume

MUSC Health partners with Yale to expand clinical trials in South Carolina

The MUSC Florence Research Center, located at MUSC Health-Florence, is one of four community-based clinical research sites across the Southeast chosen to participate in the Equitable Breakthroughs in Medicine Development

South-carolina , United-states , America , Americans , Tesheia-johnson , Equitable-breakthroughs-in-medicine-development-initiative , Office-of-clinical-research-royce-sampson , Regional-health-network , Vanderbilt-university , Yale-school-of-medicine , Morehouse-school-of-medicine , Carolina-clinical-translational-research-institute

Rare diseases in SC

Rare diseases in SC
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Bobbi-conner , Cystic-fibrosis-center , Patrick-flume , Disease-advisory ,

SC CFF honors Dr. Patrick Flume

On Feb. 23, 300 leaders and tastemakers will gather at The Cedar Room to honor Dr. Patrick Flume, Director of the Medical University of South Carolina (MUSC) Cystic Fibrosis Center,

South-carolina , United-states , University-of-south-carolina , Cystic-fibrosis-foundation , Carolina-chapter-cystic-fibrosis-foundation , Cystic-fibrosis-center , Cf-foundation , Honorary-breath-of-life-co , Cystic-fibrosis-foundation-board-of-trustees , Cedar-room , Patrick-flume

Charleston artist Scot Rittenbaum's exhibit honors daughter | Health

Charleston artist Scot Rittenbaum turned to painting as therapy after the 2018 loss of his daughter Leann to cystic fibrosis, dedicating two years to his art. Now, his emotionally charged

Charleston , South-carolina , United-states , University-of-south-carolina , Kayla-twomey-flamman , Scot-rittenbaum , Kahal-kadosh-beth , Leann-rittenbaum-ott , Adult-cystic-fibrosis-center , Rittenbaum-ott , Barbara-pearlstine-social-hall , Kahal-kadosh-beth-elohim

Gain-of-Function Talk Enhances Understanding of Research

Gain-of-Function Talk Enhances Understanding of Research
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Wuhan , Hubei , China , Paula-traktman , Clinical-research , Storm-eye-institute-auditorium , Global-health , University-of-south-carolina , College-of-graduate , Wuhan-institute-of-virology , Global-health-week , Medical-university

Study demonstrates long-term safety and clinical benefit of combination therapy for cystic fibrosis

Patients with cystic fibrosis (CF) face difficulty breathing and a decline in lung function and are at risk of early death. CF is an inherited condition that results in thick mucus build-up, persistent infection and inflammation in the lungs.

South-carolina , United-states , University-of-south-carolina , Emily-henderson , Carolina-clinical-translational-research , Nexus-research-center , Adult-cystic-fibrosis-center , Patrick-flume , Cystic-fibrosis , Cystic-fibrosis-center , South-carolina-clinical , Translational-research

Rare diseases in SC

This week Bobbi Conner talks with Dr. Patrick Flume about efforts to better understand and address the needs of patients with rare diseases in South Carolina. Dr. Flume is a Professor of Medicine and Pediatrics and he’s Director of the Cystic Fibrosis Center at MUSC. Dr. Flume is also the Chair of the SC Rare Disease Advisory Council.

South-carolina , United-states , Bobbi-conner , Cystic-fibrosis-center , Sc-rare-disease-advisory-council , Patrick-flume , Disease-advisory ,

Paratek Pharmaceuticals to Host Investor Update on the

Oct. 3 Webinar Features Presentations by Scientific Leaders in NTM and Paratek’s Management Team...

China , Boston , Massachusetts , United-states , Netherlands , Nijmegen , Gelderland , Christine-fanelle , Evan-loh , Randy-brenner , Jakko-van-ingen , Hans-vitzthum