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No Deal Brexit could endanger lives of four million Brits with rare diseases

No Deal Brexit could endanger lives of four million Brits with rare diseases
Updated: 12 Dec 2020, 3:35
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A NO-DEAL Brexit would have a detrimental impact on the care received by the four million Brits who suffer from a rare disease, a group of leading clinicians have said.
The warning comes after Prime Minister Boris Johnson said on Friday it was very, very likely the UK would be leaving the UK without a deal in place.
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The treatment received by four million Brits with a rare disease would suffer in the event of a no-deal Brexit, a group of clinicians have saidCredit: Getty Images - Getty ....

United Kingdom , Bruxelles Capitale , Frogmore Exitprincess Eugenie , Boris Johnson , European Reference Networks Erns , European Commission , Prime Minister Boris Johnson , Getty Images , Minister Boris Johnson , Reference Networks , Der Leyen , ஒன்றுபட்டது கிஂக்டம் , ப்ரூக்ஸெல்ஸ் தலைநகரம் , போரிஸ் ஜான்சன் , ஐரோப்பிய தரகு , ப்ரைம் அமைச்சர் போரிஸ் ஜான்சன் , கெட்டி படங்கள் , அமைச்சர் போரிஸ் ஜான்சன் , குறிப்பு நெட்வொர்க்குகள் ,

No deal Brexit could endanger the lives of four MILLION people with rare diseases

Experts and patient support groups signed a letter in prestigious journal Lancet
Claims dropping out of Europe without a deal on January 1 will endanger lives
It could see Briain lose access to networks established to research rare diseases
These so-called ERNs allow for crucial research to take place internationally and a no deal Brexit will leave the 4 million Brits with rare diseases at a disadvantage ....

United Kingdom , Bruxelles Capitale , Allison Watson , Angela Merkel , Simon Coveney , Marc Tischowitz , Charles Michel , Boris Johnson , European Council , University Of Cambridge , European Reference Networks , European Reference Networks Erns , Reference Networks , Minister Boris Johnson , World Trade , Level Playing Field , ஒன்றுபட்டது கிஂக்டம் , ப்ரூக்ஸெல்ஸ் தலைநகரம் , அல்லிசன் வாட்சன் , ஏஞ்சலா மர்கல் , சிமோன் கோவ்னி , சார்லஸ் மைக்கேல் , போரிஸ் ஜான்சன் , ஐரோப்பிய சபை , பல்கலைக்கழகம் ஆஃப் கேம்பிரிட்ஜ் , ஐரோப்பிய குறிப்பு நெட்வொர்க்குகள் ,

No deal Brexit could endanger the lives of four MILLION Britons

No deal Brexit could endanger the lives of four MILLION Britons
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If the UK slams out of Europe without a deal it could leave the four million Britons with rare diseases with subpar medical treatment, experts have warned.
A total of 53 leading clinicians and 20 patient support groups have signed a letter warning of the impact No Deal will have.
They say that without a deal the UK will lose access to the 24 European Reference Networks (ERNs) built to inform and aid research into rare diseases.
A rare disease that qualifies for these networks is anything that affects fewer than one in 2,000 people. ....

United Kingdom , Bruxelles Capitale , Allison Watson , Angela Merkel , Simon Coveney , Marc Tischowitz , Charles Michel , Boris Johnson , European Council , University Of Cambridge , European Reference Networks , European Reference Networks Erns , Daily Mail Mailonline , Reference Networks , Minister Boris Johnson , Daily Mail Ursula , World Trade , Level Playing Field , ஒன்றுபட்டது கிஂக்டம் , ப்ரூக்ஸெல்ஸ் தலைநகரம் , அல்லிசன் வாட்சன் , ஏஞ்சலா மர்கல் , சிமோன் கோவ்னி , சார்லஸ் மைக்கேல் , போரிஸ் ஜான்சன் , ஐரோப்பிய சபை ,

No deal Brexit could have detrimental impact for people in UK living with a rare disease

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Experts have warned that a no deal Brexit will result in the exclusion of the UK from the 24 European Reference Networks (ERNs) that were established to improve the care of patients bearing the lifelong burden of a rare disease, which require highly specialised diagnosis and treatment.
One in 17 UK citizens lives with a rare disease, which are defined as conditions that affect fewer than one in 2,000 people in the general population. A group of experts has written to
The Lancet highlighting their concerns about the detrimental impact a no deal Brexit will have on these individuals.
Rare diseases are rare, and experts are rarer still, said Dr Marc Tischkowitz from the University of Cambridge, who helped coordinate the letter. European Reference Networks were set up because no single country has the expertise or resources to cover all of the known rare diseases, which number in the thousands. They ve played a pivotal role in harnessing the collective k ....

United Kingdom , Allison Watson , Marc Tischkowitz , University Of Cambridge , European Reference Networks , European Reference Network , European Reference Networks Erns , Reference Networks , Clinical Practice Guidelines , Reference Network , ஒன்றுபட்டது கிஂக்டம் , அல்லிசன் வாட்சன் , பல்கலைக்கழகம் ஆஃப் கேம்பிரிட்ஜ் , ஐரோப்பிய குறிப்பு நெட்வொர்க்குகள் , ஐரோப்பிய குறிப்பு வலைப்பின்னல் , குறிப்பு நெட்வொர்க்குகள் , மருத்துவ ப்ர்யாக்டீஸ் வழிகாட்டுதல்கள் , குறிப்பு வலைப்பின்னல் ,