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I've moved from rare to ultra rare, that's why Rare Disease Day is important to me

Canada lags woefully behind many countries in terms of knowledge, diagnoses and treatments for rare diseases. This must change. ....

United States , Superficial Siderosis Research Alliance , Canadian Organization For Rare Disorders , First Person , Arteriovenous Malformation , Superficial Siderosis , Massachusetts General Hospital , Canadian Director , Canadian Organization , Rare Disorders , Rare Disease Day , Disease Day ,

I've moved from rare to ultra rare, that's why Rare Disease Day is important to me

Canada lags woefully behind many countries in terms of knowledge, diagnoses and treatments for rare diseases. This must change. ....

United States , Canadian Organization For Rare Disorders , Superficial Siderosis Research Alliance , First Person , Arteriovenous Malformation , Superficial Siderosis , Massachusetts General Hospital , Canadian Director , Canadian Organization , Rare Disorders , Rare Disease Day , Disease Day ,

I've moved from rare to ultra rare, that's why Rare Disease Day is important to me

Canada lags woefully behind many countries in terms of knowledge, diagnoses and treatments for rare diseases. This must change ....

United States , Superficial Siderosis Research Alliance , Canadian Organization For Rare Disorders , Log Increate Free , Arteriovenous Malformation , Superficial Siderosis , Massachusetts General Hospital , Canadian Director , Canadian Organization , Rare Disorders , Rare Disease Day , Disease Day ,