Congress Incentivizes Rare Disease Research. Big Pharma Exploits It. – Mother Jones
Loopholes in the Orphan Drug Act serve drug companies, not patients.
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Loopholes in the Orphan Drug Act serve drug companies, not patients.
<p>Racial discrimination and bias are painful realities and increasingly recognized as detrimental to the health of adults and children. These stressful experiences also appear to be transmitted from mother to child during pregnancy, altering the strength of infants’ brain circuits, according to a new study from researchers at Columbia, Yale, and Children’s Hospital of Los Angeles.</p>
Regulators on Friday approved two new one-time gene therapies for sickle cell disease that doctors hope can cure sickle cell disease.
About 20 % of patients whose medical records showed them as being alive with a serious illness were in fact deceased according to California data, leading to hundreds of unnecessary interactions such as appointment reminders, prescription refills and other kinds of wasteful outreach that strain resources and healthcare workers' time.
<p>About 20% of patients whose medical records showed them as being alive were in fact deceased according to California data. The issue is that California law makes these full death data available only "for purposes of law enforcement or preventing fraud," which doesn't include most hospitals. This leads to a lot of wasteful outreach.</p>