People with rare diseases being 'left behind' by Irish health system
People with rare diseases are being left behind by the Irish healthcare system, an Oireachtas committee has heard. The joint committee on health met on Wednesday to discuss improving the lives of those affected by rare diseases and their families. The committee heard that people with rare conditions struggle to access genetic testing and Irish patients have less access to new drugs compared to other European citizens. Witnesses at the committee also said the health system needs to train more genetic consultants as a matter of urgency due to severe staff shortages. A rare disease is a condi...