Living with rare diseases: 'If you walk into a consultant, they use Google' – The Irish Times
Gillian Stafford was showing symptoms of retinitis pigmentosa from the age of five but was not diagnosed until she was 18
Source: irishtimes.com
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"I Am Number 17" campaign opens at St Stephen's Green, bringing visibility to Ireland's rare disease community
The title of the campaign 'I Am Number 17', reflects the fact that 1 in 17 people in Ireland will be affected by a rare disease at some point in their lives
Source: imt.ie
Campaign highlights stories of people living with rare diseases
A new awareness campaign featuring 17 people with rare diseases has been launched. The ‘I am Number 17’ campaign sees people from across Ireland share
Source: imt.ie
Only 13% of people aware of rare disease could correctly identify condition - Homepage
Rare diseases affect around 6% of the Irish population, figures show.
Source: westernpeople.ie
Parents of boy (4) with rare disease say life could be 'less isolating' if there was greater awareness
Only 13pc of people who claim to have an awareness of the term “rare disease” could correctly identify a condition, a survey has revealed.
Source: independent.ie