Campaign urges politicians in Kilkenny to take action on genetic services
A new campaign, Get Rare Aware, has been launched by Rare Diseases Ireland (RDI) to bring together politicians, medical exper...
Source: kilkennypeople.ie
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Ireland falling behind on newborn screening with only 8 conditions tested compared to Italy's 48
SMA Ireland urges the expansion of newborn screening in Ireland, as timely diagnosis for rare conditions like spinal muscular atrophy is crucial
Source: imt.ie
Dublin toddler wouldn't have made her second birthday if rare disease wasn't caught on time
A Dublin toddler wouldn’t have made her second birthday if doctors hadn’t diagnosed her rare disease on time.
Source: independent.ie
Ireland way behind comparable countries for newborn screening
The National Newborn Bloodspot Screening Programme must be expanded if Ireland is to match its European counterparts, experts have said. Vicky McGrath,
Source: imt.ie
Project works to discharge Gwent hospital patients sooner
A project is working on carrying out home repairs so that hospital patients can be discharged sooner.
Source: freepressseries.co.uk