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Reps. Eshoo, Ferguson, Sens. Baldwin, Ernst Introduce Bipartisan, Bicameral Reform to Ensure Coverage for Children Born With Congenital Anomalies or Birth Defects


Drew Ferguson (R-GA) and
Tammy Baldwin (D-WI) and
Joni Ernst (R-IA) today reintroduced bipartisan, bicameral legislation to ensure health insurance coverage for needed treatment and procedures for individuals born with congenital anomalies or birth defects. The Ensuring Lasting Smiles Act would close a coverage gap to ensure that health plans cover medically necessary services related to a patient s anomaly or birth defect, including any serious dental and oral-related procedures that are necessary to maintaining health and overall function.
Too many children born with congenital anomalies are denied coverage despite the long-term harm of such conditions. These are children like Rosie, the daughter of a family in my district who has congenital cataracts. She requires contact lenses because glasses aren t powerful enough, and without these lenses she is blind and will have no chance of ever developing normal vision, said ....

United States , Drew Ferguson , Annag Eshoo , Joni Ernst , Tammy Baldwin , Anna Eshoo , Becky Abbott , Young Iowans , Network Inc , American Behcet Disease Association , American Association Of Oral , American Society Of Plastic Surgeons , American Academy Of Pediatric Dentistry , American Dental Association , News Service Press , National Foundation For Ectodermal Dysplasias , Accessible Oral Health , American Association Of Women Dentists , National Organization For Rare Disorders , American Institute Of Dental Public Health , Genetic Alliance , National Craniofacial Association , Pemphigoid Foundation , American Society For Dermatologic Surgery Association , Sturge Weber Foundation , Lymphedema Advocacy Group ,

KLS Foundation Launches First-Ever Kleine Levin Syndrome Patient Registry


KLS Foundation Launches First-Ever Kleine Levin Syndrome Patient Registry
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SAN JOSE, Calif. (PRWEB)
January 25, 2021
The Kleine-Levin Syndrome (KLS) Foundation today launched a first-of-its-kind patient registry. The registry will collect and organize information about KLS patients around the world and inform the medical and scientific research communities about KLS symptoms, episode triggers, medications and more – in a way never done before.
Kleine-Levin Syndrome is a rare neurological disorder characterized by recurring periods of excessive amounts of sleep, altered behavior and a reduced understanding of the world. Each episode lasts days, weeks or months during which time all normal daily activities stop. In between episodes, those with KLS appear to be in perfect health with no evidence of behavioral or physical dysfunction. However, individuals function daily with the frig ....

Jeff Broderick , Stephen Maier , Foundation Steve Maier , Beneufit Inc , Health Insurance Portability , Kleine Levin Syndrome , Levin Syndrome , Accountability Act , European General Data Protection Regulation , Review Board , Orphan Studies , Press Release , ஜெஃப் ப்ரொடெரிக் , ஸ்டீபன் மேயையர் , அடித்தளம் ஸ்டீவ் மேயையர் , க்ளீன் லெவின் நோய்க்குறி , லெவின் நோய்க்குறி , பொறுப்பு நாடகம் , ஐரோப்பிய ஜநரல் தகவல்கள் ப்ரொடெக்ஶந் ஒழுங்குமுறை , விமர்சனம் பலகை , ஆர்ஃபந் ஆய்வுகள் , ப்ரெஸ் வெளியீடு ,