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"Rare Adventures" Coloring Book Portrays Ill Children as Superheroes


“Rare Adventures” Coloring Book Portrays Ill Children as Superheroes
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“Rare Adventures,” the coloring book created by John Anastasiades to help in the understanding of his daughter’s rare illness. Courtesy John Anastasiades
Greek-American John Anastasiadis of Massachusetts has created a new coloring book called “Rare Adventures” as a way to enhance the understanding of his daughter’s rare illness, BPAN, and raise funds for research and treatment.
He and his wife Panayiota are the parents of a nine-year-old daughter, Kyriaki “Kyki” Anastasiadis, who suffers from a rare disease called BPAN, or Beta-Propeller Protein-Associated Neurodegeneration, which has only 500 known cases globally. As Anastasiadis says, the hunt to discover this disease and its diagnosis took several years as well as tremendous willpower and patience. ....

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How Sean McClain founded Absci at just 22 — and now leads a newly public biotech worth nearly $2B


Absci CEO and founder Sean McClain rings the closing bell on the NASDAQ on Thursday with his team as the Vancouver, Wash.-based biotech company went public. (Absci Photo)
Biotech CEOs tend to have advanced degrees and multiple academic credentials under their belt. But Sean McClain started Absci as a freshly minted grad from the University of Arizona at age 22, living with his parents and working out of a basement lab.
Fast forward a decade later, and McClain is now leading the latest Washington state company to go public.
Absci ended the day with shares up 35% from its opening price on the company’s first day on the NASDAQ. The Vancouver, Wash.-based drug development platform company has a market capitalization of nearly $2 billion. ....

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Hospital 'Trauma Centers' Charge Enormous Fees to Treat Minor Injuries and Send People Home


Jul 19, 2021
The care was ordinary. A hospital in Modesto, California, treated a 30-year-old man for shoulder and back pain after a car accident. He went home in less than three hours.
The bill was extraordinary. Sutter Health Memorial Medical Center charged $44,914 including an $8,928 “trauma alert” fee, billed for summoning the hospital’s top surgical specialists and usually associated with the most severely injured patients.
The case, buried in the records of a 2017 trial, is a rare example of a courtroom challenge to something billing consultants say is increasingly common at U.S. hospitals.
Tens of thousands of times a year, hospitals charge enormously expensive trauma alert fees for injuries so minor the patient is never admitted. ....

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